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22 Sep 2003

Pachyonychia Congenita??

Pachyonychia Congenita? (PC) Thirty-five years it's been a part of my life and I can still barely spell it! How excited I am about this Pachyonychia Project! This is even more exciting than the introduction of the World Wide Web, when I could connect for the first time with other people who had PC, and realize not only was I not alone, but there were others who knew exactly what an infected nail feels like, or understand the difficulty and pain of walking with blisters on the soles of your feet. Now, here we are, embarking on a project we hope is instrumental in finding THE CURE FOR PC. Even if it takes 20 years, what's 20 years when generations can be helped?

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