Patient Support Meeting

We recently held our Patient Support Meeting in Park City, Utah. We had 46 PCers attend, plus their family members, as well as a dozen doctors and scientists (for a total of about 130 people). It was our largest gathering ever. Our constantly growing PC Project does seem to translate into larger numbers at these meetings and we’re adjusting as we go. For example, this is the first meeting where we’ve needed two separate children’s tracks (with a younger track for those six and under).

Because of our growth, every patient meeting is new, different than the previous one. It seems we are constantly evolving. Each meeting has its own flavor, I’m sure, based on the mix of personalities. Yet in many ways, each patient meeting is the same. It is the same connecting of people who may have nothing else in common except they understand each other in ways no one else on earth can.

The best part for me at this past meeting was seeing PCers from previous meetings and meeting new people. When I saw PCers I’d met before, even two years ago, it felt like I was with good friends I’d been with only yesterday. I love the reunion feel of a patient support meeting. Then there’s the wonderful opportunity of meeting new people. I love meeting those I’ve communicated with either by phone or email because I feel like I already know them. I love finally putting a face with the name. I feel connected immediately.

At this past meeting, as at all patient meetings, I am always impressed at what people with PC are doing with their lives, how they are coping, how they are succeeding. I am amazed at the scope of careers PCers have. I see how parents are raising their children. I see how PCers manage each day. You inspire me and teach me.

So thanks to everyone who participated in this past patient meeting. I’m a better person for having been with you!