Welcome to Pachyonychia.org
 
     
Jan's Corner

Janice & David Schwart Family
Special Church Event

Rebecca Schwartz and Her Brothers!
Rebecca Schwartz and Her Brothers!

Janice N. Schwartz was diagnosed at birth with a spontaneous mutation of Pachyonychia Congenita.

She married David Schwartz in 1993 and they are the parents of 3 sons, Sam, Nate and Spencer. Two of the boys have PC.

E-mail Janice at Jan.Schwartz@pachyonychia.org

Past Postings

2012
     January
        • PC Keeps Me Guessing
2011
     December
        • Count Your Blessings
     November
        • It Could Be Worse
     September
        • Back To School
     August
     July
        • Vacation Worries
     May
        • Springtime 2011
     March
2010
     December
        • Christmas 2010
     November
        • The Advantage of a Wheelchair
     September
        • Summer 2010
     August
     May
        • Fast, Faster, Fastest
     April
        • Life Is Good
     March
        • PC Pain
     February
     January
        • HAPPY NEW YEAR!
2009
     December
        • Holiday Time PC Survival
        • Coping with PC
     October
        • Vacation Choices
        • Patient Support Meeting - Sep 2009
     August
        • The Weather
     June
        • What They CAN Do
     May
        • Empathy
     April
        • Spring Snow
     March
     February
        • Busy, busy, busy.
     January
        • Happy New Year 2009!
2008
     December
        • Different is OK
     November
        • Fall Weather
     October
        • Back to School... For me!
     September
        • Back to School... again
     August
        • I'm Back!
     January
        • Taking a Break
2007
     December
        • Patient Advisory Board
     November
        • Thanksgiving
     October
     September
        • More Changes
     August
        • Josh Groban
     July
        • After all, we're family.
     June
        • Patient Support Meeting
     May
        • IPCC Meeting
     April
        • Changes
     March
        • Comparing with Others
     February
        • Frustrated
     January
        • Happy New Year 2007!
2006
     December
        • Christmas Shopping
     October
        • RNA Interference
     September
        • Back to School
     August
        • Children with PC
     July
        • Thank You
     June
        • Still Learning about PC
     May
     March
        • Burning Feet
     February
        • Discovering PC Project
     January
        • Happy New Year 2006!
2005
     October
        • Shop for PC
     September
        • Biking
     August
        • Limericks
     July
        • Uncle!
     June
        • Understanding PC
     May
        • Summertime...
     April
        • Wicking Socks!
     March
        • Grand Rounds
     February
        • I'm Slow
     January
        • The Kiddos
2004
     December
        • Merry Christmas! from Sam, Nate & Spencer
        • My Favorite Shoes
     November
     September
        • The world has shrunk
     August
        • Back to School
     July
        • Positive Aspects of PC
     May
        • Genetic Testing
        • Infected Nails
     April
        • Spring Break
     March
        • Big Brother
        • Doctor Visits
     February
        • PC Symposium 2004
        • Symposium
     January
        • 19 January 2004
        • Pain vs. 'Unsightly Nails'
2003
     December
        • PC Project Goals
        • Balance
     November
        • "Sore Feet/Painful Feet."
        • Juan & Beto
     October
        • Diagnosis
     September
        • Pachyonychia Congenita??
0
    
        •
12 Jan 2012
PC Keeps Me Guessing

After living my whole life with PC, I find my PC still keeps me guessing. Take these past months. It’s been cold here in Utah. Typically my feet love cold weather. They still do. I still don’t turn the car heater on to the foot vents.  Too hot for my feet. I’m also still sleeping with my feet out of the covers at night. The best thing I love to do is stick my feet out the back door. It’s very cold outside and that...     Continued...

 
1 Dec 2011
Count Your Blessings

About two weeks before Thanksgiving, our family decided to do individual gratitude journals. Each of us had a paper with a list of the dates for the next two weeks. Then each day we were to write something we were thankful for that day. On Thanksgiving Day, after all the relatives had gone and it was just our own little family again, we shared are journals with one another. That was a special time for me, especially to hear what my kids and my husband were thankful for.

What I found really neat about doing the journal was instead of taking just one day only to count our blessings, by...     Continued...

 
11 Nov 2011
It Could Be Worse

For the longest time, I’ve wanted to a treatment or cure to be found for PC. I’ve especially wanted that for my children – and all the children out there - to be helped, even more so than for me.  I still do. However, lately things have happened that have made me realize there are worse things in life than having PC. Everything is relative I suppose, even in the PC family. People who only have PC nails think nails are the worst thing. For those with painful calluses and who struggle with walking, that may be the worst thing and the nails don’t seem so bad. For those...     Continued...

 
     

Email
©2003- - All Rights Reserved
Last Updated: 17 May 2011
Using this site means you accept its terms as outlined in the disclaimer and privacy policy.