2008-2009 Pc Patient Advisory Board (PAB)

The Board of Trustees of Pachyonychia Congenita Project have approved the following to serve on the 2008-2009 PAB:

Helaine Alessio - Ohio

Monica A. Costa - Brazil

Buff A. Dill - South Carolina

Holly Jones - Florida

Anita Kaier - Austria

Katri-Anna Lehto - Finland

Roseann J. McGrath - Pennsylvania

Janice Schwartz - Utah

Justin M. Trupe - Minnesota

  • All PAB members are active participants in the IPCRR and each has confirmed genetic testing for PC or a related keratin mutation.
  • There are additional openings for PAB Board members. Please contact us if you'd like to participate with other patients
    in helping PC Project achieve our goal of 'finding a cure/treatment for PC.'


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Last Updated: 14 Oct 2009
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