JOIN WITH US - ANYTHING YOU PLAN WILL BE JUST PERFECT. PLEASE BE PART WITH ALL YOUR PC COMMUNITY
We are so excited here in Salt Lake City to hear about the plans individuals are making.
- We've seen a clever flyer from France with a flip-flop lined with tacks! What a great graphic. We'll share if we can
- We've heard of plans in Indiana for a great car wash event with flirty girls and car wash guys. What fun!
- We've heard about a big walk-a-thon event at TransDerm (our pharma partner) called "Count Every Step" involving the US Congressman...
- We've heard about collection...     Continued...

Each year the American Academy of Dermatology sponsors Camp Wonder for kids with skin disease. Several PC kids have attened in the past and we know one is going in 2012. There is no cost to parents for the camp. Click here to learn about Camp Wonder.  (Thanks to the PC family that reminded us about this - we've posted the announcement each year. Please let us know about your experience with the Camp).

We are so pleased that the data from the International PC Research Registry has now been published in the Journal of the American Academy of Dermatology (JAAD). The article reports data on the first 254 genetically confirmed PC patients. The registry continues to grow and we continue to learn more. A number of studies have been completed and others are underway thanks to the patients (now over 500) who participate in the IPCRR. If you have not yet taken time to join the Registry (complete the questionnaire, send in photos, complete genetic testing) we urge you to join with other PCers and help...     Continued...

Registration is now open for the Int'l PC Consortium Annual Symposium 2012. The fee is waived for those who pre-register. Abstracts may be submitted to PC Project on or before 1 February 2012.