Pachyonychia Congenita Project: A Partnership of Patient and Medical Professional
Journal of the Dermatology Nurses' Association. Jan/Feb 2013
includes an excellent overview of Pachyonychia Congenita
Best treatment practices for pachyonychia congenita
Journal of the European Academy of Dermatology and Venereology.30 Jan 2013
A review of the clinical phenotype of 254 patients with genetically confirmed pachyonychia congenita
Journal of the American Academy of Dermatology.19 Jan 2012
The Phenotypic and Molecular Genetic Features of Pachyonychia Congenita
Journal of Investigative Dermatology.2011
includes current classification for PC
A Large Mutational Study in Pachyonychia Congenita
Journal of Investigative Dermatology.17 Feb 2011
Select List of Research Articles
Click Here to access a dozen of our favorite PC-related publications (complete with bibliography and full-text pdf files for each article.)
PC Published Research Articles
Search hundreds of peer-reviewed research articles on Pachyonychia Congenita.
PC Project has three publications to help you and others quickly learn about Pachyonychia Congenita
For Patients. This is a 16-page pamphlet that has detailed information on PC written especially for patients. One free copy is sent to each patient when they complete the forms in the PC Patient Registry.
For Schools and Friends. This is a 3-fold flyer that explains basic facts about PC
for teachers, principals, counsellors, students, co-workers, friends and neighbors.
For Medical Professionals. This is a 3-fold flyer written for medical professionals. The flyer includes the website and contact information which may not be on the published articles. We encourage you to provide these materials to nurses, dermatologists, podiatrists, general physicians, dentists and other health care providers. However, most professionals prefer to access information from articles in scientific journal. We strongly recommend including copies of recent research articles available through this website.
You may print copies to distribute or you may Contact PC Project to order additional copies.
Although these brief publications are very helpful and the Patient Brochure extremely important for patients, physicians and scientists usually only rely on articles published in peer-reviewed journals. We encourage the use of the many high quality research articles available on the PC website.