PC Project Privacy Policy

The information on the Web Site is provided as general information only. It is not intended as medical advice and is not tailored to the needs of your specific situation. Information relevant to medicine is constantly evolving as research continues and the PC Project and PC Fund, Inc. make no warranty or guarantee, either express or implied, regarding the completeness, accuracy, or currency of this information, nor its suitability for any particular purpose. Information found in text files, messages, articles or any other part of these pages should not be relied upon as a substitute for consultations with qualified health professionals who are familiar with your individual medical needs.

Any complaints or comments regarding materials on the web site may be sent via email using the Contact Us information. In certain parts of this web site, "hypertext links" may be provided to web sites which are not under the control of PC Project or PC Fund, Inc. These links are provided for convenience of reference only and are not intended as an endorsement by PC Project or PC Fund, Inc. of the organization operating the site, nor as a warranty of the completeness, accuracy, or currency of this information or its suitability for any particular purpose.

In exchange for viewing the information on this web site, you agree that PC Project and PC Fund, Inc. and those associated with these efforts shall not be liable to you for any loss or injury caused in whole or part by either negligence or contingencies beyond its control in procuring, compiling, or delivering the information. In no event will PC Project or PC Fund, Inc. or the contributors of information to this site be liable to you or anyone else for any decision made or action taken by you in reliance upon such information or for any consequential, special or similar damages you may incur despite being advised of the possibility of such damages.


PC Project respects the privacy of our donors and those who register on the website for access to special features and services. PC Project collects the name and contact information (including address and email) from donors and from those registering on the website to request information and for access to special website features. PC Project 's policy is that it does not disclose, give, sell, or transfer any personal information to others unless required for law enforcement or otherwise required by law. The contact information collected is used solely to provide free informational materials regarding Pachyonychia congenita or to provide a tax-related donation receipt to donors. All data is stored in a password encripted secure database accessed only by PC Project staff.

This Privacy Policy Statement details PC Project Privacy Policy in place since PC Project website went on-line. No changes in policy have been made in this Privacy Policy since its inception. If any change is made to this policy it will be noted and dated.

If you have any question regarding the contact information on file at PC Project, please Contact Us or telephone us at 877-628-7300.