Category:Care for PC

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DEFINITIONS USED FOR PC WIKI
Care = routines, techniques, tips used by patients
Products = equipement, shoes/socks, tools, etc. used to assist in PC care
Treatments = creams, drugs, lotions, medications or similar

Caring For PC DVD

In 2009 PC Project developed a "Caring For PC" DVD. This is the first in a series of videos prepared to assist patients and physicians in PC care techniques. Two of the sections are available for viewing on the PC Website. If you would like a copy of the Caring For PC DVD which includes these videos, please email your request to info@pachyonychia.org.

PCers Caring For PC DVD Comments K16 patient "I watched the video and was really amazed that I've been doing this to my feet for 44 years now.  My Dad, who also had PC, took care of my feet until I was 11 years old.   I was particularly disturbed by the guy who used double edge blades to cut his feet.  There is no way this man still has all of his fingers.  I have to be careful using my tool of choice (Gem Single Edge Razor Blades, Treet Single Edge Razor Blades) every time I cut them, which is about every twelve days or so.  Anyway, I've learned to be quite the contortionist when cutting my feet.  I'm extremely skilled using my left hand in certain positions even though I am right-handed.  One of the problems my dad had was when he got older and could no longer get into the positions to get at all of the calluses.  I took him to a foot doctor and watched this man cut my dad's feet in only 20 minutes.  My dad was in a lot of pain and I could hardly stand to watch it.  Clearly the foot doctor had no idea how much my dad could actually feel as he quickly cut the calluses.  I stayed in the office only because my dad had dementia and could no longer answer questions.  That was the only time I took him to the podiatrist.  After that I cut his feet for the next couple of years until he eventually passed away.  I used to spend up to two full hours taking my time and making many small skim cuts.  Even though it is dead skin you can really feel it when you cut in too deep or take too much at any one time.   I was also surprised at the person who used needles to test how deep he could cut.    That seemed to be pretty extreme.  I am not going to lie.  The video is hard to watch.  I find it much easier to actually cut them then to watch other people cut theirs.  The one thing I will add though is the video really shows the extreme nature of the disease and shows many examples of the variety of methods people use to treat their feet.  This can only help as physicians should see the video also. Another thing that surprised me with the video is the section on nails.  My sister and her daughter, also patients, and myself all have normal nails, at least on our hands.  I felt bad to see what some people, especially the young girls, must deal with on maintaining the finger nails."

External Links

PC Treatments (link to information on PC Website)

Videos & Presentations (link to sections of the Caring For PC DVD)

Subcategories

There are 8 subcategories to this category.

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Pages in category "Care for PC"

There are 4 pages in this category.

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