Category:General Pain Management
PC causes a unique type of chronic pain unlike that of most other syndromes. Further, PC pain is a very individual matter and varies greatly from day to day, season to season. However, as one PCer stated "we want PCers to be able to connect to the pain management community so they don't have to deal with pain in isolation." Dr. Sancy Leachman emphasized "we want any pain management to be safe, credible, well-defined and something as a group we feel comfortable referring to."
The 2007 PAB Patient Outreach Working Team noted that often "CARE = pain management" and Dr. Sancy Leachman has also noted that regular care for the feet is the very best pain management tool for PCers.
Intense pain that comes for no specific reason
K6a patient "this past fall, for no reason that I could find, my feet became incredibly painful - all the time - even when I wasn't walking. My calluses looked just fine and I had no blistering. I couldn't understand why they hurt so incredibly bad. It made me want to do nothing. For me, pain becomes as much a mental issue as it is a physical issue. My whole mentality gets wrapped up in the pain. The reason I'm telling you this is not to feel badly for me. I am no doctor, but sometimes I wonder if part of PC includes having this unexpected, unexplained pain. This wasn't the first time it's happened. I remember the first time I do remember it happening, many years ago. I went to my doctor, who knew my feet very well. He looked at my feet and said, "But they don't look bad." My doctor had seen my feet much worse and so when I made that emergency appointment because of the pain, my doctor expected to see my feet in worse shape. I felt a little badly at his comments, but also realized there was nothing he could do and that my feet for no reason that any of us could figure out just plain hurt - more than their usual PC pain. This happens to me maybe several times a year - not sure - but this last time, it lasted about a month. Something that helps me with the pain is to get circulation in my feet and my legs. This will sound so strange, but sometimes when my feet are really sore, I ride a stationary exercise bicycle. I don't have calluses on the arches of my feet so I can pedal the bike quite comfortably. For some reason, this seems to help my feet feel better. If it's in the middle of the night, I often do leg lifts, or raise my legs off the bed and bend my knees - just anything to get the blood flowing. There's a ton of leg exercises that I can do while on the floor and they all seem to help. I don't know if it's because I used crutches a lot and also a wheelchair in my home - I have a nifty electric one - but my feet can get extra sore from not using them. Which is difficult since, well, our feet hurt! It's hard because when I'm hurting really badly, I often want to just lie down and not move. And that's true that sometimes rest is the only help. But getting the circulation going has been a big help for me."
??? patient "I too get the sudden un-explained bouts of pain especially with my feet. even when i havent been walking about or putting my feet under stress. i still get really bad pain associated with the pressure point in my feet. Prof E O'toole has just started me on a treatment of local anaesthetic (Linocaine 2% gel under a hydrocolloid plaster) this has done wonders to take the pain away but i would advise not using over the entire foot as this can cause balancing problems caused by the loss of sensation in the foot. and we need a level of sensation to actually know where and on what our feet are walking."
K16 patient "I find the only thing that works for me is not to walk, or walk very little for a few weeks, it seems that even if I've not been on a 'long walk' sometimes I think you can over do it over the course of a few weeks or months and it eventually catches up with you. To me it seems that I am doing unseen damage below the surface of the skin and that's got to come out sooner or later. Also tension or stress makes pain worse for me so a few relaxation treats help too. "
K6a patient "I use Tiger Balm (full strength Thai mixture) and remember rub it into ankles so it feeds the whole foot"
K16 patient "Sometimes for nor reasons i have a big pain. I have to Hydrate my skin. First step, i put my feet directly in very cold water, immediately, the pain go away for 80% at least, but it come back a little back after some moment. After I put some "Vaseline" ( a grease cream : dont know the real name all over the world but in France that's it) all over the feet to hydrate it. And I do not put any sock or shoe for a moment. and take some drugs, in France its some paracetamol or around like this. I hate to hear that someone have lot of pain and do not know why. If i walk and i have pain, I know why at least."
K6a patient "I manage most of my pain w/ over-the-counter pain relievers...like acetominophen (Tylenol) or nonsteroidal anti-inflammatories (like ibuprofen (Advil/Motrin). I know that not everyone is keen on taking pills, though. It's my understanding that it's physiologically easier to PREVENT pain than to GET RID OF pain, so I typically take them before doing excessive walking...or if I'm not having a good week, I'll take them first thing in the morning. The anti-inflammatories are especially helpful when there's actually blistering...seem to make the areas less "angry" (red, hot, painful)."
K6a patient "Yes, sometimes for no cleared reason for me, my feet get in deep pain.
The only thing that really helps is to avoid walking for a few days. During this period I will give time to my feet to relax, in order to close the open sores, and in general get access to drain the blisters. In my case, I have already registered some facts, besides walking too much, which makes my feet worst:
- Specific foods: too much spice, chocolate, industrialized food, etc.(everything that brings pain cists to my body, will bring blisters to my feet)
- Stress; few hours of sleeping.
- Dry weather (since I live in a warm country, my feet is used to warm weather, and it will go really bad if I move to a dry weather)"
K6a patient "The best treatment I have experienced to reduce pain for blisters and calluses are: BLISTERS (appear on every travel, christmas period which coincides with summer in chile, etc)
- 1-Puncture the blister with a needle and thread. Leave the thread to allow draining for hours.
- 2-Soak the feet in a solution with permanganate of potassium. Will leave the skin black (If you don't want to have your feet black, you can replace the permanganate with marine salt and you should repeat the soaking for several days.), specially the blisters, but will help to dry them in one day. (one time is enough)
- 3-On the blister apply celullase with mesmicin to prevent infection and help regimarating the skin.
CALLUSES Go to a podologist. In Chile they study only for one year and I always thought it was normal to leave their office with a lot of pain because they trimmed to much. Now, I found a podologist who studied in Argentina, where they obtain a university degree. You can feel the difference. What he does is to put a soften liquid, then with a bisturi cut a part and then uses an electric disecator which burns the root of the callus and remove the callus with the bisturi with only one cut. He has an assistant who hold the leg still. He repeats the procedure for every callus. At the end of the session we finish all tired but with no pain on my feet. He always give me the last hour because he must have all the required time to do his job slowly and also because he says the need to rest after working on my feet. I am now using a cream that helps me a lot: Laboratiner vichy - podexine - podiatric care - reconditioning care for dry feet - restructuring ceramides"
Listed below are links to many of the organizations within the pain management community.
American Academy of Pain Medicine - organization for physicians including anesthesiologists and others
American Academy of Pain Management - mainly other medical professionals such as chiropractors, naturalpaths and others
American Chronic Pain Association - a grassroots group offering community support and a variety of ideas on how to deal with chronic pain
American Pain Foundation - offer a packet of informational materials; may conduct webinar or other informational opportunity for PC
American Pain Society - information and guidelines on chronic conditions such as cancer
American Society for Pain Management Nursing - organization for nurses providing services to those in pain
National Pain Foundation - An on-line educational and support community for persons in pain, their families and physicians.
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