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The PC Wiki is constantly being updated and features information from patients with comments from PC physicians and scientists and includes tips, direct links to products and vendors. To make the tips most useful, we identify each contributor by specific PC type (PC-K6a, PC-K6b, PC-K6c, PC-K16, PC-K17). Choice of care techniques and products will vary depending on the specific type of PC, the gene and mutation, and simply personal preferences.
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Check back frequently for new information and new pages. Information is gathered from patient web meetings, patient emails, Facebook postings, Patient Support Meeting discussion, and physician notes. Our goal is to provide a central place where PC patients can find tips and information from other patients and where patients can share what works best for them and what they have experienced.
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''NOTE: If you have any comments, products, tips, or tools that you would like to share, please email info@pachyonychia.org.''
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== Welcome to the PC Project Patient-to-Patient Wiki ==
== Welcome to the PC Project Patient-to-Patient Wiki ==
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[[:Category: Disability Benefits]]
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[[:Category: Blisters]]
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[[:Category: Calluses (Keratoderma)]]
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[[:Category: Cracks]]
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[[:Category: Footwear]]
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[[:Category: Caring for Nail Dystrophy]]
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[[:Category: Caring for Cysts]]
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[[:Category: Caring for Mouth and Tongue]]
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[[:Category: Exercise & Physical Fitness]]
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[[:Category: Caring for Follicular Hyperkeratosis]]
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[[:Category: Genetic Testing]]
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[[:Category: General Pain Management]]
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[[:Category: Pain Management]]
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[[:Category: Miscellaneous Questions and Concerns]]
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[[:Category: Shoes & Socks]]
 
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[[:Category: Tools]]
 
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[[:Category: Treatments]]
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[[:Category: Life with PC - Jan's Corner Archive]]

Current revision

The PC Wiki is constantly being updated and features information from patients with comments from PC physicians and scientists and includes tips, direct links to products and vendors. To make the tips most useful, we identify each contributor by specific PC type (PC-K6a, PC-K6b, PC-K6c, PC-K16, PC-K17). Choice of care techniques and products will vary depending on the specific type of PC, the gene and mutation, and simply personal preferences.

Check back frequently for new information and new pages. Information is gathered from patient web meetings, patient emails, Facebook postings, Patient Support Meeting discussion, and physician notes. Our goal is to provide a central place where PC patients can find tips and information from other patients and where patients can share what works best for them and what they have experienced.

NOTE: If you have any comments, products, tips, or tools that you would like to share, please email info@pachyonychia.org.

Welcome to the PC Project Patient-to-Patient Wiki

Category: Blisters

Category: Calluses (Keratoderma)

Category: Cracks

Category: Footwear

Category: Caring for Nail Dystrophy

Category: Caring for Cysts

Category: Caring for Mouth and Tongue

Category: Caring for Follicular Hyperkeratosis

Category: General Pain Management

Category: Miscellaneous Questions and Concerns


Category: Life with PC - Jan's Corner Archive

Personal tools