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(Welcome to the PC Project Patient-to-Patient Wiki)
Current revision (16:54, 10 October 2013) (edit) (undo)
 
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'''PC Wiki is currently under construction.'''
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The PC Wiki is constantly being updated and features information from patients with comments from PC physicians and scientists and includes tips, direct links to products and vendors. To make the tips most useful, we identify each contributor by specific PC type (PC-K6a, PC-K6b, PC-K6c, PC-K16, PC-K17). Choice of care techniques and products will vary depending on the specific type of PC, the gene and mutation, and simply personal preferences.
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The PC Wiki features information from patients on PC care.
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Check back frequently for new information and new pages. Information is gathered from patient web meetings, patient emails, Facebook postings, Patient Support Meeting discussion, and physician notes. Our goal is to provide a central place where PC patients can find tips and information from other patients and where patients can share what works best for them and what they have experienced.
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The PC Wiki includes direct links to products and vendors. To make the tips most useful, we identify each contributor by specific PC type (PC-K6a, PC-K6b, PC-K6c, PC-K16, PC-K17). The PC Wiki also includes comments from PC physicians and scientists. Choice of care techniques and products is very individual, and may be influenced by the gene or mutation, or even personal preferences.
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Check back frequently for new pages. Topics and comments will be gathered from the Patient Message Board as well as other resources.
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''NOTE: If you have any comments, products, tips, or tools that you would like to share, please email info@pachyonychia.org.''
''NOTE: If you have any comments, products, tips, or tools that you would like to share, please email info@pachyonychia.org.''
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== Welcome to the PC Project Patient-to-Patient Wiki ==
== Welcome to the PC Project Patient-to-Patient Wiki ==
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[[:Category: Caring for Keratoderma]]
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[[:Category: Blisters]]
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[[:Category: Calluses (Keratoderma)]]
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[[:Category: Cracks]]
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[[:Category: Footwear]]
[[:Category: Caring for Nail Dystrophy]]
[[:Category: Caring for Nail Dystrophy]]
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[[:Category: Miscellaneous Questions and Concerns]]
[[:Category: Miscellaneous Questions and Concerns]]
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[[:Category: Life with PC - Jan's Corner Archive]]
[[:Category: Life with PC - Jan's Corner Archive]]

Current revision

The PC Wiki is constantly being updated and features information from patients with comments from PC physicians and scientists and includes tips, direct links to products and vendors. To make the tips most useful, we identify each contributor by specific PC type (PC-K6a, PC-K6b, PC-K6c, PC-K16, PC-K17). Choice of care techniques and products will vary depending on the specific type of PC, the gene and mutation, and simply personal preferences.

Check back frequently for new information and new pages. Information is gathered from patient web meetings, patient emails, Facebook postings, Patient Support Meeting discussion, and physician notes. Our goal is to provide a central place where PC patients can find tips and information from other patients and where patients can share what works best for them and what they have experienced.

NOTE: If you have any comments, products, tips, or tools that you would like to share, please email info@pachyonychia.org.

Welcome to the PC Project Patient-to-Patient Wiki

Category: Blisters

Category: Calluses (Keratoderma)

Category: Cracks

Category: Footwear

Category: Caring for Nail Dystrophy

Category: Caring for Cysts

Category: Caring for Mouth and Tongue

Category: Caring for Follicular Hyperkeratosis

Category: General Pain Management

Category: Miscellaneous Questions and Concerns


Category: Life with PC - Jan's Corner Archive

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