The PC Wiki is constantly being updated and features information from patients with comments from PC physicians and scientists and includes tips, direct links to products and vendors. To make the tips most useful, we identify each contributor by specific PC type (PC-K6a, PC-K6b, PC-K6c, PC-K16, PC-K17). Choice of care techniques and products will vary depending on the specific type of PC, the gene and mutation, and simply personal preferences.

Check back frequently for new information and new pages. Information is gathered from patient web meetings, patient emails, Facebook postings, Patient Support Meeting discussion, and physician notes. Our goal is to provide a central place where PC patients can find tips and information from other patients and where patients can share what works best for them and what they have experienced.

NOTE: If you have any comments, products, tips, or tools that you would like to share, please email This email address is being protected from spambots. You need JavaScript enabled to view it..