At PC Project, there are moments we hear about again and again from people living with Pachyonychia Congenita (PC) and related painful palmoplantar Epidermal Differentiation Disorders (pEDDs).
The moment symptoms begin.
The moment of diagnosis.
And the moment someone realizes they are not alone.
That last moment is often the most powerful.
Every day, PC Project helps patients and families find answers, connect with others who understand, and access the support they need. From free genetic testing and patient resources to research funding and global community connections, this work happens because of supporters who make a steady, ongoing commitment to our mission.
This April, we are proud to launch The Steady Relief Circle, our monthly giving community dedicated to supporting patients year-round.
Monthly gifts help ensure that PC Project can continue to:
- Provide free genetic testing to families searching for answers
- Connect patients and caregivers around the world
- Fund research that moves us closer to better treatments and a cure
- Offer hope and support when families need it most
Stories from Our Community
The heart of this campaign is the families and individuals whose lives have been changed through support, connection, and answers.
For the first time, we didn’t feel alone.
One family shared that after their daughter was diagnosed with PC before her first birthday, they turned to PC Project searching for answers. Through free genetic testing, education, and connection to other families who understood their journey, they found clarity, community, and hope during an overwhelming time.
PC Project changed how we show up for each other.
Another family described how receiving a diagnosis transformed confusion and frustration into compassion and understanding. What began as uncertainty became a deeper appreciation of what their loved ones were experiencing and a desire to help ensure other families receive the same support.
These stories are why steady, ongoing support matters.
Somewhere in the world today, a family is hearing the words Pachyonychia Congenita for the first time. A parent is searching online late at night for answers. A patient is wondering if anyone truly understands what they are going through.
The Steady Relief Circle helps ensure that when they reach out, PC Project is there.
Join The Steady Relief Circle
Your monthly gift helps bring lasting hope and relief to patients and families living with PC and related painful skin conditions.
Together, we can make sure no one faces PC alone.
Create your recurring gift by selecting one of the options below. Be sure “Monthly Donation” is selected so your gift will automatically continue each month.
UK donors: please use our JustGiving option to add Gift Aid at no extra cost.
