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PC and PC Project Represented at AAD 2025

March 16, 2025

PC Project, and especially you, our patients, were represented at the 2025 American Academy of Dermatology (AAD) Conference, which is attended by tens of thousands of dermatologists worldwide.

Janice Schwartz speaking about PC and PC Project. Photo credit: Neil Rajan

Janice Schwartz, our executive director, was invited to speak at a session about rare skin diseases, specifically Epidermal Differentiation Disorders (EDDs), which include PC and other painful, rare diseases represented by the PC Project. Being included in this prestigious lineup of dermatologists and scientists was a massive honor for us. Because our diseases are rare, we were incredibly thankful to be given a platform at this prestigious conference to highlight the impact of PC on patients, the research work of the PC Project, and potential treatments we are exploring.

An impressive lineup of experts, Drs. Cheryl Bayart, Amy Paller, Keith Choate, Antoni Gostynski, Joyce Teng, Juliette Mazereeuw-Hautier, Angela Hernández Martín, and patient representative for ichthyosis, Denise Gass, also spoke during the session. (Amy, Antoni, Joyce, and Angela are members of PC Project’s Medical and Scientific Advisory Board.)

Janice Schwartz, Antoni Gostynski, Joyce Teng, Cheryl Bayart

Special shout-out to Professor Edel O’Toole for sending scientists and future dermatologists, Rebecca McCarthy, Marianne De Brito, and Jeva Cernova, from her London lab, to the session. They have been working diligently on various PC research projects and studies. These young, bright minds met with Janice after the AAD session to explain their critical work in more detail.

Rebecca McCarthy, Marianne De Brito, Jeva Cernova from Edel O’Toole’s lab

More photo highlights from the AAD below


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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

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