• Skip to main content
  • Skip to footer

Pachyonychia Congenita Project

Fighting for a cure. Connecting & helping patients. Empowering Research.

Donate
VIEW MENUMENU
  • Pachyonychia Congenita
        • What Is Pachyonychia Congenita?
          • Could I Have PC?
          • Getting Diagnosed
          • Genetics
          • Image Library
          • Glossary
          • Brochures
          • Patient Stories
        • Patient Registry (IPCRR)
          • Patient Registry Data
        • Understanding my Genetic Testing Results
          • K6a-pEDD-PC
          • K6b-pEDD-PC
          • K6c-pEDD-PC
          • K16-pEDD-PC
          • K17-pEDD-PC
          • Non-PC Palmoplantar EDDs
        • Managing and Caring For PC
          • Tips and Tools
          • Living With PC
          • PC & Children
          • Working With Medical Professionals
          • Family & Friends: How To Help
          • Video Library
  • For Professionals
        • For Professionals
          • International PC Consortium
          • Pharmaceutical Partners
          • Refer a Patient
          • Patient Registry (IPCRR)
            • Patient Registry Data
            • Non-PC Palmoplantar EDDs
          • Advocacy Partners
        • PC Research
          • Apply for a Grant
          • Awarded Grants
          • Published Research Articles
          • Clinical Trials
        • Patient Voices
          • Quality of Life
          • Patient Stories
          • Patient-Focused Drug Development Meeting
  • Ways To Give
        • Ways You Can Give
          • Donate
          • Donate Just Giving UK
          • Steady Relief Circle
          • Donor-Advised Fund
          • Giving Stock
          • Legacy Society
        • Raise Awareness
          • How You Can Help
          • Fundraising Ideas
          • Share Your Story
          • PC Advocates
          • Volunteer
        • Our Supporters
  • News & Events
        • News
          • Current Newsletter
          • Newsletter Archives
          • Sign up for our Newsletter
        • Events
          • Patient Support Meetings
          • IPCC Meetings
          • Video Library
  • About Us
        • About PC Project
        • Medical and Scientific Advisory Board
        • Financial & Legal Information
        • Contact Us

Advocacy Partners

PC Project collaborates with other professional organizations to provide the best care and research opportunities for patients with skin diseases.

AAD

American Academy of Dermatology Association

    CSD

    Coalition of Skin Diseases

      ESDR

      European Society for Dermatology Research

        GlobalSkin

        International Alliance of Dermaology Patient Organizations

          ISID

          International Societies for Investigative Dermatology

            NIAMS

            National Institute of Arthritis and Musculoskeletal and Skin Diseases

              PeDRA

              Pediatric Dermatology Research Alliance

                SID

                Society for Investigative Dermatology

                  Footer

                  PC Project logo in white
                  PACHYONYCHIA CONGENITA PROJECT

                  P.O. Box 17850
                  Holladay, UT 84117

                  info@pachyonychia.org

                  801-987-8758

                  EIN 68-0567493

                  • Facebook
                  • Instagram
                  • LinkedIn
                  • Twitter
                  • YouTube

                  Sign up for our Newsletter

                  Loading

                  Support PC Project

                  There are many ways you can help improve the lives of those who suffer from Pachyonychia Congenita.

                  Learn More
                  • Contact Us
                  • About Us
                  • Donate
                  • Patient Registry

                  Copyright © 2026 PC Project. All rights reserved. Pachyonychia Congenita Project is a 501(c)(3) under federal tax guidelines. Using this site means you accept its terms as outlined in the disclaimer and privacy policy.