The global GivingTuesday means so much to us. For this one day each year, generous people from over the world are focused on the impact we can make when we come together to support the causes we care about. Causes like finding a cure for PC in our lifetime. This GivingTuesday, … [Read more...] about #MyPCDream | GivingTuesday 2023
PeDRA Conference 2023
PC Project exhibited, networked, and educated pediatric dermatologists, researchers, and medical students at the annual meeting in Atlanta … [Read more...] about PeDRA Conference 2023
PCGA0001-2023
Awarded a one-year, $88,200 grant from Pachyonychia Congenita Project. The main problem of patients with PC is the intense pain they feel when walking. This is due to the malfunction of some skin-forming proteins, especially in the soles of the feet. This malfunction is due to errors (mutations) … [Read more...] about PCGA0001-2023
PCGA0003-2023
Awarded a one-year, $97,500 grant from Pachyonychia Congenita Project. Pachyonychia congenita (PC) is characterized by excessive callus formation which is caused by thickening of the outer layer of the skin, the epidermis. To form the epidermis, the resident cells have to undergo drastic changes … [Read more...] about PCGA0003-2023
PCGA0004-2023
Awarded a one-year, $100,000 grant from Pachyonychia Congenita Project. The project aims at improving the understanding of the disease mechanisms involved in painful plantar keratoderma in PC patients. It will compare the expression of genes and proteins involved at a global and cellular level. … [Read more...] about PCGA0004-2023
Atlanta: PC Lunch and Gathering
Members of our community met for several hours to eat, talk, and share encouragement and experiences about living with PC. On Saturday, November 11, 2023, PC Project invited local PC patients and their loved ones to join us for lunch. We were already in town for the PeDRA (Pediatric Dermatology … [Read more...] about Atlanta: PC Lunch and Gathering
Living With Pachyonychia Congenita: Patient Perspectives and Activism
Over the past year, to raise awareness about PC Project and the patients who live with this rare and painful skin condition, PC Project's Executive Director, Janice Schwartz, was interviewed by two different journals, the Dermatology Times and the Journal of Dermatology Nurses' Association. … [Read more...] about Living With Pachyonychia Congenita: Patient Perspectives and Activism
DC Patient Gathering
PC Project representatives attended a NIAMS Coalition Meeting in Washington DC in September, and while we were in town, were delighted to gather with PC patients and family members in the area for a brunch, graciously hosted at the home of Barbara Feinstein and PC Project board member Aaron Klein, … [Read more...] about DC Patient Gathering
