4L Trophy Driving for PC Awareness

February 3rd, 2023 / Pachyonychia

Le Coeur Au Pied is a partnering with Maëva, who is the daughter of PCer (Valérie Curco), and Elisa, two students in veterinary school to participate in the 4L Trophy 2023. Being a partner will provide Le Coeur Au Pied and PC Project with important media showcase because the logos will be affixed to the car and leaflets will be…

PCers in Clinical Trials or Studies

February 3rd, 2023 / Pachyonychia

If you are currently in a PC clinical trial like the Palvella VAPAUS Phase 3 Trial or one of the smaller PC studies going on right now, THANK YOU!   Your participation is important and needed. Drugs for PC will not be approved without studies and trials. Even if you are in a study for a treatment that doesn’t seem…

In Loving Memory: Ira Henry Beyer Sr.

February 2nd, 2023 / Pachyonychia

We at PC Project offer our sincerest condolences to the family of Ira Henry Beyer Sr. His son, Ira Beyer Jr. and his wife, Lori, are wonderful members of our PC community. Donations were kindly made to PC Project in lieu of flowers and his Mr. Beyer’s memory. We are always humbled that people think of our important work at…

Officially Introducing Our New Logo

February 2nd, 2023 / Pachyonychia

Because PC Project was founded on love for people who suffer with the genetic skin disease PC, our very first logo was a heart with a DNA strand in it. Along the way, we realized our disease is often misunderstood. Because “Pachyonychia” literally means “thick nails”, some professionals have thought we are only a nail disorder. But thanks to powerful…

Happy 20th Birthday PC Project!

February 2nd, 2023 / Pachyonychia

This year marks our 20th year of serving PC patients! When PC Project was first started in 2003, nothing was being done in PC research or for patient support. So throughout 2023, we’re going to share some of our favorite milestones to show how far we’ve come and what we’re doing to make the next 20 years even better for…

#MyRareValentine

January 28th, 2023 / Pachyonychia

Is there someone rare and special in your life? Showcase them in our PC Project #MyRareValentine campaign! You can choose your child, husband, wife, best friend, mom, dad, doctor, siblings, caregivers, or anyone important to you to be your rare Valentine. Write a short description of why that certain person is wonderful and upload a photo in the form below….

PC Patients Needed to Complete 3 Short Surveys

January 20th, 2023 / Pachyonychia

We need your help. Because of your past participation, PC researchers know they can count on you as we continue to learn more about PC and its impact on your life. We have three SHORT, but separate surveys that need to be filled out by PC patients. The information in these surveys has been requested by researchers to better understand…

2023 IPCC Symposium at ISID

November 28th, 2022 / Pachyonychia

Please join us for our annual meeting of scientific collaboration to advance research and drug development for those who suffer from PC and other rare and painful PPKs. Date: May 10th, 2023 Time: 9:00 am to 3:00 pm, Tokyo, Japan Location: Takao Room (42nd Floor) at the Keio Plaza Hotel Tokyo, Japan To be held in person in conjunction with…

Special PPK Session at AAD Featuring PC Dermatologists and Researchers

November 2nd, 2022 / Pachyonychia

At the 2023 American Academy of Dermatology (AAD) Association Annual Meeting in New Orleans, PC and other painful conditions with PPK will be featured in a special focus session “U052 Palmoplantar keratoderma (PPK): step by step”. We invite all our dermatologist friends at the AAD to attend and to invite their colleagues to join the one hour session on Saturday,…

2023 New Orleans Patient Support Meeting

November 2nd, 2022 / Pachyonychia

March 15-17, 2023 Hilton Garden Inn New Orleans Convention Center1001 S. Peters Street, New Orleans, LA 70130, USA SCHEDULE Wednesday, March 15th – Check in starts at 5pm and Welcome Dinner at 6:00 pmThursday, March 16th – All day presentations, discussions and mealsFriday, March 17th – Half day meeting with presentations and discussions, ending around noon, followed by a lunch…

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