A Fundraiser for PC near Bryce Canyon National Park PC researcher, Dr. Roger Kaspar, and his family hosted a fun and educational fundraiser for Pachyonychia Congenita (PC) in Panguitch, Utah, a town just outside Bryce National Park. From Dr. Kaspar: In recognition of the harvest of our … [Read more...] about Quinoa Harvest & Andean Festival 2023
An Open Letter to Palvella
A Message of Gratitude and Hope from Jack Padovano, PC Project Board Chair Dear Wes and the entire Palvella Team, In the world of medical research, hope and determination often come hand in hand with challenges and setbacks. It is within these moments that the true impact of support and … [Read more...] about An Open Letter to Palvella
Update on Rapamycin Clinical Trial
On July 20th, 2023, our industry partner, Palvella Therapeutics, shared topline results from the Phase 3 study of QTORIN™ 3.9% rapamycin anhydrous gel (QTORIN™ rapamycin) for the treatment of PC through a press release. The main points of the press release including the … [Read more...] about Update on Rapamycin Clinical Trial
Ask Me Anything – Live with Amit
We are grateful to PCer, Amit Parikh, for sharing his experiences on an Instagram and Facebook Live held Thursday, June 13, 2023. Amit is a technology professional with experience as an industry operator and management consultant. He clearly is not letting his PC stop him from being successful in … [Read more...] about Ask Me Anything – Live with Amit
GRIDD
You are invited to participate in ground-breaking research that is being conducted by the International Alliance for Dermatology Patient Organizations (also known as GlobalSkin) in collaboration with researchers at Cardiff University (UK) and University Medical Centre Hamburg-Eppendorf … [Read more...] about GRIDD
Now Accepting Grant Applications
PC Project is pleased to support projects related to PC-specific research with $50,000-$100,000 grants. Deadline is August 31, 2023. … [Read more...] about Now Accepting Grant Applications
PC Project at ISID 2023
PC Project attended the first International Societies for investigative Dermatology Meeting in Japan, Tokyo in May 2023. This was an amazing meeting. PC Project had an exhibit booth, met with scientist friends, both new and old, and most importantly, hosted the annual International Pachyonychia … [Read more...] about PC Project at ISID 2023
Three Words to Describe PC
Please list in this form online three words that describe what PC means to you and how you will feel when a cure is found. … [Read more...] about Three Words to Describe PC
