Help Us End the Pain
June is PC Awareness Month – Help Us End the Pain
PC is a rare, painful genetic skin condition that affects people around the world. For those living with PC, daily life is filled with unimaginable challenges – blistered feet, thickened nails, painful calluses, and constant, unrelenting pain with every step.
This June, during PC Awareness Month, we’re shining a spotlight on the reality of living with PC, including the emotional and physical pain. That’s why we’ve chosen our 2025 theme: End the Pain. This message speaks to the heart of our mission – to raise awareness, accelerate research, and bring real relief to individuals and families affected by this debilitating disease.
Throughout the month of June, we’ll be sharing stories from our incredible international PC community and inviting you to take action.
Together, we can drive progress, inspire hope, and help end the pain of PC.
#PCAwarenessMonth #EndThePain
What’s more – all donations to PC Project during this special month will be matched twice by a generous donor.
Our goal this month is to bring visibility to the daily, hidden pain of PC—physical, emotional, and social—and inspire action through personal stories and connection. Please join us. We are stronger together!
Awareness 2025 – Thank You
Together, we will end the pain This June — PC Awareness Month — you helped shine a light on the hidden pain of PC. You read our stories. You shared your own. You donated. You spoke up. Because of you,…
Awareness 2025 – Roseann
People close to me know I have PC. Sure, it’s part of my life—but I won’t let it define me. That’s the mindset I’ve always clung to: “Fake it ‘til you make it.” “Mind over matter.” “No pain, no gain.”…
Awareness 2025 – Klein
“Is today the day things change?” Lots of parents worry about their child’s future. But when your child has PC, there’s a deeper anxiety — a nagging question always in the background: Is today the day things change? Back when…
Awareness 2025 – Jim
When you live with PC, you don’t just manage physical pain. You manage fear. Fear that your colleagues will see you as less capable and you’ll be rejected. Fear your boss will treat you differently. Fear you could lose your…
Awareness 2025 – Janice
Then she hung up on me… Almost every day, I speak with people at the very beginning of their PC journey. Sometimes it’s a newly diagnosed adult. Sometimes it’s a parent of a child with PC after a late night…
Awareness 2025 – Jack
I’ve been lying about my pain. But not anymore. Most people in my life have no idea I’m in pain every single day. It’s a truth I’ve kept to myself since I was a kid. Even the people closest to…
