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Pachyonychia Congenita Project

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Care, Medications, Topicals, & Treatments

PC/pEDD Medical Provider Directory

May 21, 2026

With patients across the United States and in over 60 countries, PC Project is often asked by patients or caregivers if we know of a doctor near them who knows even a little about their rare skin disorder. Physicians, we invite you to add your name to our Medical Provider Directory to connect … [Read more...] about PC/pEDD Medical Provider Directory

Medications & Topicals

January 18, 2023

One of the challenges with PC is its veritable nature and each person is unique. Please remember just because something works for one PCer it may not work for another. You will have to find out what works best for you. Please discuss any care tips or treatments with your local doctor. This is not to … [Read more...] about Medications & Topicals

Other Medications & Procedures

November 5, 2016

Below is a list of other medications and procedures that PCers have tried. Botulinum Toxin and PC (Botox, Dysport) COMMENTS: “No one fully understands why Botulinum toxin works for PC at all. It helps people with hyperhydrosis (too much sweat), and so the thought is that it reduces … [Read more...] about Other Medications & Procedures

Topical Medications

November 5, 2016

PCers try a variety of different topical products to help the symptoms that come from PC. They are either Over-the-Counter, Prescription or Other based. These are just a few products we have heard. Remember just because something works for one person doesn't mean it will work for … [Read more...] about Topical Medications

Oral Medications

November 5, 2016

Patients have discussed the need for more effective pain medication. Many regularly use various painkillers available to reduce and mask the pain but of their reluctance to be on them long term because of side effects. They will also have to pay later for the activity they did while the pain was … [Read more...] about Oral Medications

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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

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