The global GivingTuesday means so much to us. For this one day each year, generous people from over the world are focused on the impact we can make when we come together to support the causes we care about. Causes like finding a cure for PC in our lifetime. This GivingTuesday, … [Read more...] about #MyPCDream | GivingTuesday 2023
Events
Atlanta: PC Lunch and Gathering
Members of our community met for several hours to eat, talk, and share encouragement and experiences about living with PC. On Saturday, November 11, 2023, PC Project invited local PC patients and their loved ones to join us for lunch. We were already in town for the PeDRA (Pediatric Dermatology … [Read more...] about Atlanta: PC Lunch and Gathering
Quinoa Harvest & Andean Festival 2023
A Fundraiser for PC near Bryce Canyon National Park PC researcher, Dr. Roger Kaspar, and his family hosted a fun and educational fundraiser for Pachyonychia Congenita (PC) in Panguitch, Utah, a town just outside Bryce National Park. From Dr. Kaspar: In recognition of the harvest of our … [Read more...] about Quinoa Harvest & Andean Festival 2023
DC Patient Gathering
PC Project representatives attended a NIAMS Coalition Meeting in Washington DC in September, and while we were in town, were delighted to gather with PC patients and family members in the area for a brunch, graciously hosted at the home of Barbara Feinstein and PC Project board member Aaron Klein, … [Read more...] about DC Patient Gathering
PC Town Hall August 26, 2023
Thanks to those of you who were able to join us at the PC Project Town Hall event this past Saturday, August 26. During the Town Hall, we had the privilege of sharing the latest updates on the PC Project, including our new website and listening to enlightening talks by Dr. Edel O’Toole from the … [Read more...] about PC Town Hall August 26, 2023
2023 IPCC Symposium
With excellent presentations, a room packed with researchers, and many more standing in the back, our annual meeting of scientific collaboration to advance research and drug development for those who suffer from PC exceeded our expectations! Date: May 10th, 2023Time: 8:00 am to 1:00 pm, Tokyo, … [Read more...] about 2023 IPCC Symposium
Special PPK Session at AAD Featuring PC Dermatologists
At the 2023 American Academy of Dermatology (AAD) Association Annual Meeting, PC and other painful conditions with PPK were featured in a special focus session "Palmoplantar keratoderma (PPK): step by step" on Saturday, March 18, 2023. We are thankful for all our dermatologist friends, old and … [Read more...] about Special PPK Session at AAD Featuring PC Dermatologists
2023 New Orleans Patient Support Meeting
March 15-17, 2023Hilton Garden Inn New Orleans Convention Center PC patients and their loved ones, along with PC scientists and doctors gathered for the first in person Patient Support Meeting since 2019. (Our last scheduled meeting was cancelled in 2020 due to Covid-19.) Our meeting theme … [Read more...] about 2023 New Orleans Patient Support Meeting
