Join PC Project CEO Janice Schwartz on Zoom for an orientation where you'll learn about the resources, programs, and support available to you through PC Project. It's also an opportunity to ask questions, meet with somebody who understands the PC/pEDD journey, and discover how to stay connected with … [Read more...] about New to PC Project?
Events
PC Project Scientific Session at ESDR 2026
PC Project made an impact at the European Society for Dermatology Research in Heidelberg, Germany, on September 9-11. For three days, we had the opportunity to connect with skin scientists from around the world - and to make sure PC and related pEDDs were part of the conversation. A special thank … [Read more...] about PC Project Scientific Session at ESDR 2026
Putting Faces To Rare Skin Disease Research
Some researchers who work on rare skin diseases have never met an actual patient with the condition. That's why after our Epidermal Differentiation Disorders Symposium in Chicago, on the evening of May 12, 2026, we hosted a researcher networking dinner featuring a panel of EDD patients and family … [Read more...] about Putting Faces To Rare Skin Disease Research
2026 Patient Support Meeting
What a wonderful few days in London! PC Project’s 2026 Patient Support Meeting brought together more than 110 members of the global PC/pEDD community, including 50 patients from 17 countries, as well as family members, researchers, physicians, and industry partners. The meeting was filled with … [Read more...] about 2026 Patient Support Meeting
2026 Epidermal Differentiation Disorders Symposium
On May 12, 2026, researchers, clinicians, trainees, patient advocates, industry representatives, and NIH leaders gathered at the Hilton Chicago for a full-day Epidermal Differentiation Disorders (EDD) Symposium held in conjunction with the annual meeting of the Society for Investigative … [Read more...] about 2026 Epidermal Differentiation Disorders Symposium
PC Project Town Hall Nov 2025
The meeting began with welcoming attendees from around the world and introducing the PC Project's focus on genetic conditions, including plans for future conferences and fundraising achievements. A panel of scientists and doctors discussed strategies for explaining PC symptoms to doctors, addressing … [Read more...] about PC Project Town Hall Nov 2025
PC Research Session at the 2025 ESDR
A Landmark Meeting Focused on PC PC Project participated in the 2025 European Society for Dermatology Research (ESDR) Annual Meeting held in Antwerp, Belgium, September 10-13, 2025. We had a booth at the Patient Village, attended inspiring sessions, networked with new and old friends, and held … [Read more...] about PC Research Session at the 2025 ESDR
PC Project Town Hall Saturday, August 16, 2025
An overview of PC Project and an update of what is currently being accomplished was shared during the Aug 12 PC Project Town Hall On Saturday, August 16 at 10am MT/12pm ET, PC Project held a Town Hall for our community! Because so many patients (and their families) are new to PC Project, we … [Read more...] about PC Project Town Hall Saturday, August 16, 2025
