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Pachyonychia Congenita Project

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IPCC Research Symposium

PC Project Scientific Session at ESDR 2026 

June 28, 2026

PC Project made an impact at the European Society for Dermatology Research in Heidelberg, Germany, on September 9-11. For three days, we had the opportunity to connect with skin scientists from around the world - and to make sure PC and related pEDDs were part of the conversation. A special thank … [Read more...] about PC Project Scientific Session at ESDR 2026 

2026 Epidermal Differentiation Disorders Symposium

November 10, 2025

On May 12, 2026, researchers, clinicians, trainees, patient advocates, industry representatives, and NIH leaders gathered at the Hilton Chicago for a full-day Epidermal Differentiation Disorders (EDD) Symposium held in conjunction with the annual meeting of the Society for Investigative … [Read more...] about 2026 Epidermal Differentiation Disorders Symposium

PC Research Session at the 2025 ESDR

September 27, 2025

A Landmark Meeting Focused on PC PC Project participated in the 2025 European Society for Dermatology Research (ESDR) Annual Meeting held in Antwerp, Belgium, September 10-13, 2025. We had a booth at the Patient Village, attended inspiring sessions, networked with new and old friends, and held … [Read more...] about PC Research Session at the 2025 ESDR

2025 IPCC Symposium

October 31, 2024

Our annual collaborative event with leading scientists in the rare genetic skin disease space PC Project held the annual IPCC Symposium on May 7, 2025, as part of the Society for Investigative Dermatology (SID) Annual Meeting in San Diego, California. The goal: To present relevant research and … [Read more...] about 2025 IPCC Symposium

2024 IPCC & DHHD Symposia

May 22, 2024

Two synergistic scientific meetings joined forces to understand rare skin disorders and advance research and treatments for patients who suffer from these painful diseases All researchers and medical professionals were invited to join us right before the 2024 Society for Investigative … [Read more...] about 2024 IPCC & DHHD Symposia

2023 IPCC Symposium

May 12, 2023

With excellent presentations, a room packed with researchers, and many more standing in the back, our annual meeting of scientific collaboration to advance research and drug development for those who suffer from PC exceeded our expectations! Date: May 10th, 2023Time: 8:00 am to 1:00 pm, Tokyo, … [Read more...] about 2023 IPCC Symposium

2022 PC Leadership Planning Meeting

October 20, 2022

Key members of PC Project Medical and Scientific Advisory Board met in Amsterdam on September 28, 2022 for a robust 6 hour strategic planning meeting, organized under the leadership of Eli Sprecher and Pierre Coulombe. The way PC Project will operate and approach PC research going forward has … [Read more...] about 2022 PC Leadership Planning Meeting

2022 Hybrid IPCC Symposium

February 2, 2022

The 18th Annual International Pachyonychia Congenita Consortium (IPCC) Symposium Wednesday, May 18, 2022 8am-12pm PDT (9am-1pm MDT, 10am-2pm CDT, 11am-3pm EDT, 4pm-8pm UK, 5pm-9pm France, 6pm-10pm Israel) To be held in person with the Society for Investigative Dermatology (SID) Annual Meeting at … [Read more...] about 2022 Hybrid IPCC Symposium

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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

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