STRONGER TOGETHER Date: Saturday, November 19, 2022Time: 8am-12pm MT (10am-2pm ET; 3pm-7pm UK time) The PC community gathered together for a few hours of presentations, discussions, and a medical and scientific panel to answer your questions! The meeting was free and held virtually in … [Read more...] about 2022 Virtual PC Patient Support Meeting
Past Events
ESDR Meeting Amsterdam
PC Project was invited to be in a patient village and participate with the ESDR (European Society of Dermatology Research) Conference, September 28-30, 2022. Thanks to the graciousness of the ESDR leadership for the opportunity to learn, to educate others about PC, and network with additional … [Read more...] about ESDR Meeting Amsterdam
2022 PC Leadership Planning Meeting
Key members of PC Project Medical and Scientific Advisory Board met in Amsterdam on September 28, 2022 for a robust 6 hour strategic planning meeting, organized under the leadership of Eli Sprecher and Pierre Coulombe. The way PC Project will operate and approach PC research going forward has … [Read more...] about 2022 PC Leadership Planning Meeting
Stronger Together #GivingTuesday 2022
Please join us for our #GivingTuesday campaign to spread awareness about PC and let others know how important this cause is to you! Because PC is ultra-rare, we are #StrongerTogether! And since PC Project unites patients, friends, family members, physicians, researchers, and pharmaceutical … [Read more...] about Stronger Together #GivingTuesday 2022
2022 Amsterdam Mini PC Gathering
Because PC Project representatives were in Amsterdam for the European Society for Dermatological Research (ESDR) Annual Meeting, they couldn’t resist the opportunity to hold a small PC Patient Meeting with local Dutch PC patients. (And some patients traveled from other countries to join, too!) On … [Read more...] about 2022 Amsterdam Mini PC Gathering
PC Fundraiser: Quinoa Harvest and Andean Festival 2022
What do a Quinoa Harvest and Andean Festival and PC Project have in common? They're both all about improving the health and lives of others! One of our favorite PC researchers, Dr. Roger Kaspar, planned and hosted the event on a fun Saturday full of Peruvian music and food, education, and hiking … [Read more...] about PC Fundraiser: Quinoa Harvest and Andean Festival 2022
2022 Minneapolis PC Patient Gathering
PC Project spent a few days in the land of 10,000 lakes with a group of PC friends. On August 12-13, 2022, PC Project had a small Patient Gathering in Minneapolis, MN. This meeting was sponsored by Palvella to help accelerate enrollment in the Phase 3 Clinical trial. Some patients were there to be … [Read more...] about 2022 Minneapolis PC Patient Gathering
2022 Hybrid IPCC Symposium
The 18th Annual International Pachyonychia Congenita Consortium (IPCC) Symposium Wednesday, May 18, 2022 8am-12pm PDT (9am-1pm MDT, 10am-2pm CDT, 11am-3pm EDT, 4pm-8pm UK, 5pm-9pm France, 6pm-10pm Israel) To be held in person with the Society for Investigative Dermatology (SID) Annual Meeting at … [Read more...] about 2022 Hybrid IPCC Symposium
