March 15-17, 2023Hilton Garden Inn New Orleans Convention Center PC patients and their loved ones, along with PC scientists and doctors gathered for the first in person Patient Support Meeting since 2019. (Our last scheduled meeting was cancelled in 2020 due to Covid-19.) Our meeting theme … [Read more...] about 2023 New Orleans Patient Support Meeting
Patient Support Meetings
2022 Virtual PC Patient Support Meeting
STRONGER TOGETHER Date: Saturday, November 19, 2022Time: 8am-12pm MT (10am-2pm ET; 3pm-7pm UK time) The PC community gathered together for a few hours of presentations, discussions, and a medical and scientific panel to answer your questions! The meeting was free and held virtually in … [Read more...] about 2022 Virtual PC Patient Support Meeting
2022 Amsterdam Mini PC Gathering
Because PC Project representatives were in Amsterdam for the European Society for Dermatological Research (ESDR) Annual Meeting, they couldn’t resist the opportunity to hold a small PC Patient Meeting with local Dutch PC patients. (And some patients traveled from other countries to join, too!) On … [Read more...] about 2022 Amsterdam Mini PC Gathering
2022 Minneapolis PC Patient Gathering
PC Project spent a few days in the land of 10,000 lakes with a group of PC friends. On August 12-13, 2022, PC Project had a small Patient Gathering in Minneapolis, MN. This meeting was sponsored by Palvella to help accelerate enrollment in the Phase 3 Clinical trial. Some patients were there to be … [Read more...] about 2022 Minneapolis PC Patient Gathering
2021 Virtual PC Patient Support Meeting
Date: Saturday, November 20, 2021Time: 8am-12pm MT (10am-2pm ET; 3pm-7pm UK time) We met with the PC community for a few hours of presentations, discussions, and a medical and scientific panel to answer your questions! The meeting was free and held virtually in a Zoom meeting format. Our … [Read more...] about 2021 Virtual PC Patient Support Meeting
2020 PC Teen Web Meeting Nov 21
All PC teenagers invited to join a virtual meeting to discuss issues, challenges, and positive aspects of life with PC. There are no age restrictions but the content will be directed at older children/teenagers with PC. Parents, we do not have emails for your children/teenagers so you will either … [Read more...] about 2020 PC Teen Web Meeting Nov 21
2020 France PC Patient Support Meeting Postponed
This announcement will come as no surprise, but due to the COVID-19 pandemic, PC Project is postponing the 2020 France PC Patient Support Meeting. We have talked with our physicians, scientists and representatives from Le Coeur Au Pied, our French PC advocacy group, and agree this is … [Read more...] about 2020 France PC Patient Support Meeting Postponed
2019 Boston Patient Support Meeting June 20-22
Boston PC Patient Support MeetingJune 20-22, 2019Hilton Boston Logan Airport Hotel Thursday, June 20th - welcome dinner starts at 6:30 pmFriday, June 21st- all day presentations, discussions and mealsSaturday, June 22nd - half day meeting with the closing luncheon at 12:30 … [Read more...] about 2019 Boston Patient Support Meeting June 20-22
