📣 SAVE THE DATE! We’re excited to announce that the 2027 PC/pEDD Patient Support Meeting will be held May 9–11 in Orlando, Florida! 🌴 Mark your calendar and start making plans to join us! And this invitation isn’t just for patients and families. Physicians and researchers … [Read more...] about Save the Date! PC Project Patient Support Meeting Orlando 2027
Patient Support Meetings
2026 Patient Support Meeting
What a wonderful few days in London! PC Project’s 2026 Patient Support Meeting brought together more than 110 members of the global PC/pEDD community, including 50 patients from 17 countries, as well as family members, researchers, physicians, and industry partners. The meeting was filled with … [Read more...] about 2026 Patient Support Meeting
2025 PC Patient Support Meeting
Learning, laughter, and love in San Diego, California, as we shared, taught and inspired one another What a fantastic time we all had a the 2025 Patient Support Meeting May 4-6, 2025 at the Hilton San Diego Airport/Harbor Island Hotel in San Diego, California. Being with people who really … [Read more...] about 2025 PC Patient Support Meeting
2024 Lisbon PC Patient Support Meeting
Where patients, loved ones, physicians, and researchers gathered to learn from and be inspired by one another Date: September 1-3, 2024Venue: Altis Grand Hotel Lisbon, Rua Castilho, 11, 1269-072, Lisbon, Portugal Click here for a pdf of the program book. What a fantastic time we had in … [Read more...] about 2024 Lisbon PC Patient Support Meeting
2023 New Orleans Patient Support Meeting
March 15-17, 2023Hilton Garden Inn New Orleans Convention Center PC patients and their loved ones, along with PC scientists and doctors gathered for the first in person Patient Support Meeting since 2019. (Our last scheduled meeting was cancelled in 2020 due to Covid-19.) Our meeting theme … [Read more...] about 2023 New Orleans Patient Support Meeting
2022 Virtual PC Patient Support Meeting
STRONGER TOGETHER Date: Saturday, November 19, 2022Time: 8am-12pm MT (10am-2pm ET; 3pm-7pm UK time) The PC community gathered together for a few hours of presentations, discussions, and a medical and scientific panel to answer your questions! The meeting was free and held virtually in … [Read more...] about 2022 Virtual PC Patient Support Meeting
2022 Amsterdam Mini PC Gathering
Because PC Project representatives were in Amsterdam for the European Society for Dermatological Research (ESDR) Annual Meeting, they couldn’t resist the opportunity to hold a small PC Patient Meeting with local Dutch PC patients. (And some patients traveled from other countries to join, too!) On … [Read more...] about 2022 Amsterdam Mini PC Gathering
2022 Minneapolis PC Patient Gathering
PC Project spent a few days in the land of 10,000 lakes with a group of PC friends. On August 12-13, 2022, PC Project had a small Patient Gathering in Minneapolis, MN. This meeting was sponsored by Palvella to help accelerate enrollment in the Phase 3 Clinical trial. Some patients were there to be … [Read more...] about 2022 Minneapolis PC Patient Gathering
