PC Project is excited to host a Town Hall on November 14, bringing the community together for an opportunity to ask questions and hear from a panel of experts: Dr. Edel O’Toole, Dr. Pierre Coulombe, Dr. Robyn Hickerson, and Dr. Dave Hansen. This interactive session will offer participants the … [Read more...] about November Town Hall
Upcoming Events
Save the Date! PC Project Patient Support Meeting Orlando 2027
📣 SAVE THE DATE! We’re excited to announce that the 2027 PC/pEDD Patient Support Meeting will be held May 9–11 in Orlando, Florida! 🌴 Mark your calendar and start making plans to join us! And this invitation isn’t just for patients and families. Physicians and researchers … [Read more...] about Save the Date! PC Project Patient Support Meeting Orlando 2027
Save the Date! IPCC Symposium Orlando 2027
Attention researchers and physicians, PC Project will be hosting our annual International PC Consortium Research Symposium starting the afternoon or evening of May 11 and ending early afternoon of May 12, just before the start of the Society for Investigative Dermatology Meeting in Orlando, … [Read more...] about Save the Date! IPCC Symposium Orlando 2027
Connection Circle: Olmsted Syndrome Patients
Our second Connection Circle will focus on the patients and families in our registry affected by TRPV3, PERP, or MBTPS2 pEDDs. Their disease is also referred to as Olmsted Syndrome. These patients share similar molecular pathways to PC gene variants and in some cases, their features look just … [Read more...] about Connection Circle: Olmsted Syndrome Patients
2025 PC Patient Support Meeting
Learning, laughter, and love in San Diego, California, as we shared, taught and inspired one another What a fantastic time we all had a the 2025 Patient Support Meeting May 4-6, 2025 at the Hilton San Diego Airport/Harbor Island Hotel in San Diego, California. Being with people who really … [Read more...] about 2025 PC Patient Support Meeting
2023 IPCC Symposium
With excellent presentations, a room packed with researchers, and many more standing in the back, our annual meeting of scientific collaboration to advance research and drug development for those who suffer from PC exceeded our expectations! Date: May 10th, 2023Time: 8:00 am to 1:00 pm, Tokyo, … [Read more...] about 2023 IPCC Symposium
Special PPK Session at AAD Featuring PC Dermatologists
At the 2023 American Academy of Dermatology (AAD) Association Annual Meeting, PC and other painful conditions with PPK were featured in a special focus session "Palmoplantar keratoderma (PPK): step by step" on Saturday, March 18, 2023. We are thankful for all our dermatologist friends, old and … [Read more...] about Special PPK Session at AAD Featuring PC Dermatologists
2023 New Orleans Patient Support Meeting
March 15-17, 2023Hilton Garden Inn New Orleans Convention Center PC patients and their loved ones, along with PC scientists and doctors gathered for the first in person Patient Support Meeting since 2019. (Our last scheduled meeting was cancelled in 2020 due to Covid-19.) Our meeting theme … [Read more...] about 2023 New Orleans Patient Support Meeting
