Every June, those of us living with Pachyonychia Congenita (PC) - plus our families and friends who love us - come together around a chosen theme to raise awareness about this debilitating disease. This year, our theme for PC Awareness Month is "What I Wish You Knew About PC." We are so … [Read more...] about PC Awareness – June 2023
Fundraising Examples
4L Trophy Driving for PC Awareness
Maéva et Élisa sont amies et toutes les 2 élèves vétérinaires de Toulouse. Passionnées d'aventure, elles décident de participer au 4L Trophy. Pour cela, elles ont besoin d'être sponsorisées pour les divers frais ainsi que pour l’inscription et la préparation de la voiture. Tout … [Read more...] about 4L Trophy Driving for PC Awareness
PC Fundraiser: Quinoa Harvest and Andean Festival 2022
What do a Quinoa Harvest and Andean Festival and PC Project have in common? They're both all about improving the health and lives of others! One of our favorite PC researchers, Dr. Roger Kaspar, planned and hosted the event on a fun Saturday full of Peruvian music and food, education, and hiking … [Read more...] about PC Fundraiser: Quinoa Harvest and Andean Festival 2022
