We are incredibly grateful to the families in our community who turn their personal challenges into action that helps others. On April 18, Julie and Sol participated in a Firewalk for PC at Mumbles Cricket Club in Swansea, Wales, raising funds to support the work of PC Project. Julie’s husband, … [Read more...] about Firewalk 2026
Fundraising Examples
Swing Fore PC – Golf Fundraiser
James Robertson, a member of our PC family, has organized a Swing Fore PC Golf Fundraiser to raise support Pachyonychia Congenita Project. This fun and meaningful event will take place June 20, 2026 at Dunsford Golf and Country Club in Ontario, Canada with a 3:00 PM shotgun start. Participants … [Read more...] about Swing Fore PC – Golf Fundraiser
End the Pain: Join the Campaign to Help People Living with PC
Every step hurts. From the Bottom of Our Hearts — Thank You! Our first-ever Peer-to-Peer Fundraising Campaign was nothing short of extraordinary — and it’s all thanks to you, our amazing PC community. Together, we not only reached our $50,000 goal… we surpassed … [Read more...] about End the Pain: Join the Campaign to Help People Living with PC
Running for PC
PC Supporter Runs Windsor Half Marathon to Raise Awareness and Funds for PC Patients Samantha Hassen is an excellent example of raising awareness for PC! She does not have PC herself, but some of her dear family members do. Sam trained for months and then ran the Windsor Half Marathon on … [Read more...] about Running for PC
Quinoa Harvest & Andean Festival 2024
A special fundraiser for those who suffer from painful calluses Thanks to all who joined us as we to celebrated the Quinoa Harvest and immersed ourselves in the vibrant culture of the Andean region, all while raising funds for PC research! About this event for Pachyonychia Congenita The … [Read more...] about Quinoa Harvest & Andean Festival 2024
Mom Spreads PC Awareness in the Workplace
Claudia Avella, from Spain is a mom of a PCer and an active member of our international PC community. Not only did she translate one of our brochures into Spanish, she also spread awareness about PC by writing the following article for her work newsletter: "I would like to tell you about a … [Read more...] about Mom Spreads PC Awareness in the Workplace
PC Awareness – June 2023
Every June, those of us living with Pachyonychia Congenita (PC) - plus our families and friends who love us - come together around a chosen theme to raise awareness about this debilitating disease. This year, our theme for PC Awareness Month is "What I Wish You Knew About PC." We are so … [Read more...] about PC Awareness – June 2023
4L Trophy Driving for PC Awareness
Maéva et Élisa sont amies et toutes les 2 élèves vétérinaires de Toulouse. Passionnées d'aventure, elles décident de participer au 4L Trophy. Pour cela, elles ont besoin d'être sponsorisées pour les divers frais ainsi que pour l’inscription et la préparation de la voiture. Tout … [Read more...] about 4L Trophy Driving for PC Awareness
