Jan's Corner

PC Keeps Me Guessing 12 January 2012 After living my whole life with PC, I find my PC still keeps me guessing. Take these past months. It’s been cold here in Utah. Typically my feet love cold weather. They still do. I still don’t turn the car heater on to the foot vents. Too hot for my feet. I’m … [Read more...] about Jan’s Corner 2012

Getting Old 31 March 2011 A few weeks ago I sat in a high school auditorium with Dave and all my children except Sam, who was up on stage, singing in a choir. As I watched Sam perform and looked over at my children in the seats next to me, I felt a little freaked out. Yes, I’ll use the word … [Read more...] about Jan’s Corner 2011

HAPPY NEW YEAR! 1 January 2010 Happy New Year to my PC friends! Last month during the first Kid’s Webinar, the question was asked, “What is something good about having PC?” One young man answered, “I get to meet other people from all over, like on this webinar.” I thoroughly agree with that boy’s … [Read more...] about Jan’s Corner 2010

Happy New Year 2009! 1 January 2009 Happy New Year! As I’ve thought my hopes for PC Project and PC research in 2009, I’ve found it difficult to know exactly what I hope for. The reason why is because every year previously, the progress made by PC Project and PC research has always exceeded any … [Read more...] about Jan’s Corner 2009

Taking a Break 1 January 2008 We're giving Janice a break from writing this monthly column. We hope you enjoy these entries from 2004-2007. We may post special submissions from PCers around the world from time to time. If you'd like to submit a column, please send to Jan'sCorner@pachyonychia.org. … [Read more...] about Jan’s Corner 2008

Happy New Year 2007! 1 January 2007 Happy New Year! When I write a Jan’s Corner, I try to write about what’s on my mind in my PC life. My most overwhelming thought right now is that of incredible gratitude to the people who are working so hard for PC Project and PC research. I wish I could somehow … [Read more...] about Jan’s Corner 2007

Happy New Year 2006 1 January 2006 And happy it is! With plans already set in motion, this year appears even more promising and more wonderful than last year – if that is possible. Included in the 2006 plans are another patient meeting in Scotland, several important scientific gatherings for PC … [Read more...] about Jan’s Corner 2006

The Kiddos 1 January 2005 Okay, here's another entry about the kiddos. (For me, at this point in my life, I'm often more concerned with my children's “life with PC” than my own “life with PC.”) Now that the school year is half over, I'm reporting that it is going pretty well for Sam and Nate. (I … [Read more...] about Jan’s Corner 2005