PC Project exhibited, networked, and educated pediatric dermatologists, researchers, and medical students at the annual meeting in Atlanta … [Read more...] about PeDRA Conference 2023
News
Living With Pachyonychia Congenita: Patient Perspectives and Activism
Over the past year, to raise awareness about PC Project and the patients who live with this rare and painful skin condition, PC Project's Executive Director, Janice Schwartz, was interviewed by two different journals, the Dermatology Times and the Journal of Dermatology Nurses' Association. … [Read more...] about Living With Pachyonychia Congenita: Patient Perspectives and Activism
NIAMS Coalition Outreach & Education Meeting 2023
PC Project attended the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) Coalition Education & Outreach meeting on September 19, 2023 at the National Institutes of Health (NIH) campus. The meeting provided educational and networking opportunities, especially with … [Read more...] about NIAMS Coalition Outreach & Education Meeting 2023
Sol-Gel Phase 1 Update
Erlotinib ointment 3.5% and 5% were investigated by Sol-Gel on healthy volunteers in maximal use condition. Following 28 days of daily application all 12 subjects have completed the study. In general both Erlotinib ointment 3.5% and 5% are considered to be well tolerated , no systemic … [Read more...] about Sol-Gel Phase 1 Update
Coalition of Skin Diseases Video features PC
We are grateful to Executive Director, Janice Schwartz, for going outside of her comfort zone to be filmed while sharing the pain and the PC story with others. … [Read more...] about Coalition of Skin Diseases Video features PC
An Open Letter to Palvella
A Message of Gratitude and Hope from Jack Padovano, PC Project Board Chair Dear Wes and the entire Palvella Team, In the world of medical research, hope and determination often come hand in hand with challenges and setbacks. It is within these moments that the true impact of support and … [Read more...] about An Open Letter to Palvella
Update on Rapamycin Clinical Trial
On July 20th, 2023, our industry partner, Palvella Therapeutics, shared topline results from the Phase 3 study of QTORIN™ 3.9% rapamycin anhydrous gel (QTORIN™ rapamycin) for the treatment of PC through a press release. The main points of the press release including the … [Read more...] about Update on Rapamycin Clinical Trial
Ask Me Anything – Live with Amit
We are grateful to PCer, Amit Parikh, for sharing his experiences on an Instagram and Facebook Live held Thursday, June 13, 2023. Amit is a technology professional with experience as an industry operator and management consultant. He clearly is not letting his PC stop him from being successful in … [Read more...] about Ask Me Anything – Live with Amit
