PC Project is growing—and we’re excited to welcome Dr. Eric Lane as our new Development Director. Eric brings extensive experience in nonprofit fundraising, rare disease and patient advocacy, including work with individual donors, foundations, and corporate and pharmaceutical partners. Just … [Read more...] about PC Project Welcomes Dr. Eric Lane as Development Director
News
New to PC Project?
Join PC Project CEO Janice Schwartz on Zoom for an orientation where you'll learn about the resources, programs, and support available to you through PC Project. It's also an opportunity to ask questions, meet with somebody who understands the PC/pEDD journey, and discover how to stay connected with … [Read more...] about New to PC Project?
Connection Circle: Parents
Join us Saturday, September 19th for parents helping parents. Raising a child with PC and other pEDDs comes with unique challenges, and no one understands that journey better than the parents. PC Project's first Connection Circle, especially for parents, will be held … [Read more...] about Connection Circle: Parents
PC Project Connection Circles
Introducing PC Project's New Way to Unite and Serve our Community PC Project is excited to announce our newest community program, Connection Circles. Connection Circles are peer-led, open discussion sessions where patients come together in a warm, supportive environment to connect with others … [Read more...] about PC Project Connection Circles
Thank You, Jim!
Thank You, Jim: A True PC Warrior After years of dedicated service, longtime Board member Jim Rittle is stepping down from the PC Project Board of Directors. While we'll certainly miss his perspective around the Board table, we're even more grateful for the countless ways … [Read more...] about Thank You, Jim!
Step Up For PC: Peer-to-Peer Campaign
Imagine if every step hurt For most people, taking a walk is something they never think twice about. For someone living with Pachyonychia Congenita (PC) or another painful palmoplantar Epidermal Differentiation Disorder (pEDD), every step can be painful. Walking, standing, working, going to … [Read more...] about Step Up For PC: Peer-to-Peer Campaign
July Town Hall
Expanding Our Reach: Mission Expansion Q&A For more than 20 years, PC Project has worked to improve life for people and families affected by Pachyonychia Congenita (PC). Now, we’re expanding our reach to more clearly recognize and support people living with related painful … [Read more...] about July Town Hall
Expanding Our Reach
An Important Update About the Future of PC Project We are sharing an important update about the future of PC Project and how we will communicate our work moving forward. After many months of study, discussion, expert consultation, and careful consideration, we have approved a soft … [Read more...] about Expanding Our Reach
