I do not want people to look at my nails, I want them to look inside my heart. Desplácese hacia abajo para leer mi historia en español. Hello, My name is Olivia Castro Lay (PC-K6a) and I am 2 years old. As soon as I was born my mother and my pediatrician Dr. Fabiola observed something … [Read more...] about Olivia Castro Lay
Patient Stories
Diego Avila
I was born with two teeth and with several nails on my hands and feet with dark color. My name is Diego Avila, I am 7 years old and I live in Valera, Venezuela with my parents and my 10 year old brother, Fernando. I was diagnosed clinically by a dermatologist with Pachyonychia Congenita at 3 … [Read more...] about Diego Avila
Coraline
My name is Coraline and I am almost one year old. I was born a healthy, normal baby. At 3 days old, just before leaving the hospital, I had just a touch of jaundice, but it wasn’t severe enough to need any sort of treatment. My skin and nails turned a bit yellow, but nothing out of the ordinary … [Read more...] about Coraline
Flynn Brodie
Flynn is such a happy-go-lucky, cheeky, typical little three-year-old boy who knows no difference in his life. My son Flynn was born at the very healthy weight of 9 pounds 5 ounces. Flynn and I spent three days at the hospital with no real issues until we came home. My daughter asked me … [Read more...] about Flynn Brodie
James Wark
James has felt a genuine bond of dedication and a feeling of warmth and love within the PC family. From a young infant, I knew I was different from the other children I was around. As a youngster, you know you’re different, but you don’t ask or say anything to anyone. You just get on with … [Read more...] about James Wark
Catana Abundis
Catana has learned to let the love for life blur out the pain. This is the truth—because of the pain, when my husband says “good morning baby,” I often want to cry. Then I see our beautiful sons (our rescue dogs) and his beautiful face and I think beyond the pain. I think beyond the … [Read more...] about Catana Abundis
Sean Dempsey
Cane and wheelchair help Sean get around. When I was three days old, the nails on my feet and hands turned yellow. The pediatrician told my mother that it was because of a solution that was used at birth. They would grow out white. The day I was discharged from the hospital at … [Read more...] about Sean Dempsey
George Brentnall
George's life with PC and pain I was born with PC in 1959 near Derby. My parents didn’t know at the time that I had PC, and they didn’t know it would be called PC, because it didn’t actually show until I was around 6 months old when the nails on both my hands and feet began to thicken. By … [Read more...] about George Brentnall