PC Awareness 2025

Together, we will end the pain This June — PC Awareness Month — you helped shine a light on the hidden pain of PC. You read our stories. You shared your own. You donated. You spoke up. Because of you, more people now understand what it means to live with PC. More people care. More people … [Read more...] about Awareness 2025 – Thank You

People close to me know I have PC. Sure, it’s part of my life—but I won’t let it define me. That’s the mindset I’ve always clung to: “Fake it ‘til you make it.” “Mind over matter.” “No pain, no gain.” I used them like armor. But the truth is, behind all those sayings… I’ve suffered from deep … [Read more...] about Awareness 2025 – Roseann

“Is today the day things change?” Lots of parents worry about their child’s future. But when your child has PC, there’s a deeper anxiety — a nagging question always in the background: Is today the day things change? Back when our daughter Audrey was four or five, we were on a family trip … [Read more...] about Awareness 2025 – Klein

When you live with PC, you don’t just manage physical pain. You manage fear. Fear that your colleagues will see you as less capable and you’ll be rejected. Fear your boss will treat you differently. Fear you could lose your job if people saw your PC and made false assumptions, like you’re … [Read more...] about Awareness 2025 – Jim

Then she hung up on me... Almost every day, I speak with people at the very beginning of their PC journey. Sometimes it’s a newly diagnosed adult. Sometimes it’s a parent of a child with PC after a late night of worried Googling brought them to our website. I answer their questions. I try to … [Read more...] about Awareness 2025 – Janice

I’ve been lying about my pain. But not anymore. Most people in my life have no idea I’m in pain every single day. It’s a truth I’ve kept to myself since I was a kid. Even the people closest to me don’t know. But at our PC Patient Support Meeting in San Diego just a month ago, standing in … [Read more...] about Awareness 2025 – Jack