Allison Block loves horses. She also lives with pachyonychia congenita (PC), a genetic condition that causes painful calluses on the feet. For Allison, horseback riding is a wonderful way to enjoy something she loves while spending less time on her feet. Earlier this month, Allison and her horse, … [Read more...] about Allison and Bubbles: Chasing Dreams with PC
PC Kids Corner
Tips for Going Back to School
Going back to school can be stressful, especially for students with PC. However, with preparation, support, and understanding, returning to school does not have to be overwhelming. Below are some tips from other people with PC and their parents in the PC community on how to make the transition … [Read more...] about Tips for Going Back to School
Camp Discovery
Every summer, the American Academy of Dermatology (AAD) sponsors five (5) one-week sessions of Camp Discovery -- a camp designed specifically to meet the medical needs of kids living with chronic skin conditions such as eczema, psoriasis, vitiligo, alopecia, epidermolysis bullosa, ichthyosis, or any … [Read more...] about Camp Discovery
Living with PC for Children
PC varies greatly in how and when it begins to affect children. The age at which symptoms appear and their severity can depend on the specific genetic mutation as well as the individual child. How PC changes over time is different for every individual. Questions such as Will PC get worse with … [Read more...] about Living with PC for Children
The brilliant things PC kids are achieving!
We like to focus on all the things PC kids CAN do, because that list is long! Please share with us all the things you as a PC kid are achieving despite having PC. Do you like to read? Ride a bike? Play with Legos? Let us know and send us a photo for this web page! … [Read more...] about The brilliant things PC kids are achieving!
Supporting PC Project and the PC Community
PC Project is a small nonprofit organization powered largely by dedicated volunteers. Our work depends on the generosity of volunteers, donors, and supporters around the world as we strive to improve the lives of those affected by PC and advance research toward better treatments and, ultimately, a … [Read more...] about Supporting PC Project and the PC Community
For Parents and Caregivers
If you are a parent or caregiver of a child with PC, remember that you are not alone. Caring for a child with a rare condition can be challenging, and PC Project is here to support you every step of the way with information, resources, and a community that understands. Because Pachyonychia … [Read more...] about For Parents and Caregivers
Living with PC
I think this is the section that really needs to be broken down by age: 0-5, 5-11, 12+ This section may also need to be broken down by different mutation. For example, we found that although Timmy (K16) had blisters when he was younger, his PC didn’t really impact his life until he was older … [Read more...] about Living with PC
