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Pachyonychia Congenita Project

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PC Newsletter

PC Project Newsletter Sept. 2026

September 18, 2026

Sept. 2026 | Vol 21, No. 6 In This Issue: Last week, I received a call from a person to our community - a grown man with a painful palmoplantar disorder who, with the help of AI, found PC Project. The call was very emotional as his voice broke at times because he was finally talking with … [Read more...] about PC Project Newsletter Sept. 2026

PC Project Newsletter August 2026

September 15, 2026

Aug 2026 | Vol 21, No. 5 In This Issue: Introducing PC Project Connection Circles PC Project is excited to announce our newest community program, Connection Circles. Connection Circles are virtual peer-led, open discussion sessions where patients come together in a warm, supportive … [Read more...] about PC Project Newsletter August 2026

PC Newsletter July 2026

July 9, 2026

July 2026 | Vol 21, No. 4 In This Issue: Expanding Our Reach: Important Update About the Future of PC Project After many months of study, discussion, expert consultation, and careful consideration, the PC Project Board has approved a soft rebrand that better reflects both the evolving … [Read more...] about PC Newsletter July 2026

PC Newsletter May 2026

May 27, 2026

May 2026 | Vol 21, No. 3 In this Issue: Advancing Research, Building Connections, Creating Hope PC Project continues to make meaningful progress across research, advocacy, patient support, and physician engagement. In recent months, we have participated in major scientific meetings, … [Read more...] about PC Newsletter May 2026

PC Newsletter Mar 2026

March 23, 2026

March 2026 | Vol 21, No. 2 In this Issue: Because of You: Progress Behind the Scenes Every time we begin putting together a newsletter, I think we’ll only have a few updates to share - but I'm always reminded just how much is happening behind the scenes. From connecting with researchers … [Read more...] about PC Newsletter Mar 2026

PC Newsletter Jan 2026

January 15, 2026

In this Issue: PC Project: State of the Organization By Jack Padovano & Janice Schwartz With the start of a new year, we reflect on the progress we’ve made together and share where we’re headed next. Whether you live with PC or another PPK, are a family member, researcher, … [Read more...] about PC Newsletter Jan 2026

PC Newsletter Oct 2025

October 28, 2025

As we enter this season of thanks, here are just some of the highlights from the past few months that we are grateful for: Moving the Mission Forward: Update from the Executive Director The past few months have been a whirlwind of activity for PC Project! We proudly represented our … [Read more...] about PC Newsletter Oct 2025

PC Newsletter July 2025

July 28, 2025

In this newsletter, we invite you to explore the following announcements and activities: Everything we do is focused on helping patients and their families who turn to us for answers, support, and hope. Together, we are working to find meaningful, lasting solutions for rare genetic skin … [Read more...] about PC Newsletter July 2025

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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

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