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Thoughts from PC'ers

WalesOnline Article: ‘My feet are so callused I have to wear flip-flops and take a scalpel to them every fortnight.’

April 27, 2022 by Pachyonychia

Below is full text from the article: Smith, Mark (2022, March 2). 'My feet are so callused I have to wear flip-flops and take a scalpel to them every fortnight.' WalesOnline. https://www.walesonline.co.uk/news/health/my-feet-callused-wear-flip-23260932 WARNING: This story contains graphic … [Read more...] about WalesOnline Article: ‘My feet are so callused I have to wear flip-flops and take a scalpel to them every fortnight.’

Filed Under: PC Perspectives, Thoughts from PC'ers

Life with PC — Jan’s Corner Archive

November 5, 2012 by Pachyonychia

Janice N. Schwartz was diagnosed at birth with a spontaneous mutation of Pachyonychia Congenita. Janice married David Schwartz in 1993, and is the reason that PC Project was organized. Dave and Jan have three sons and one daughter: Sam, Nate, Spencer, and Rebecca. From 2003 to 2012, the blog on … [Read more...] about Life with PC — Jan’s Corner Archive

Filed Under: Thoughts from PC'ers

Jan’s Corner 2012

November 5, 2012 by Pachyonychia

PC Keeps Me Guessing 12 January 2012 After living my whole life with PC, I find my PC still keeps me guessing. Take these past months. It’s been cold here in Utah. Typically my feet love cold weather. They still do. I still don’t turn the car heater on to the foot vents. Too hot for my feet. I’m … [Read more...] about Jan’s Corner 2012

Filed Under: Jan's Corner, Thoughts from PC'ers

Jan’s Corner 2011

November 5, 2011 by Pachyonychia

Getting Old 31 March 2011 A few weeks ago I sat in a high school auditorium with Dave and all my children except Sam, who was up on stage, singing in a choir. As I watched Sam perform and looked over at my children in the seats next to me, I felt a little freaked out. Yes, I’ll use the word … [Read more...] about Jan’s Corner 2011

Filed Under: Jan's Corner, Thoughts from PC'ers

Jan’s Corner 2010

November 5, 2010 by Pachyonychia

HAPPY NEW YEAR! 1 January 2010 Happy New Year to my PC friends! Last month during the first Kid’s Webinar, the question was asked, “What is something good about having PC?” One young man answered, “I get to meet other people from all over, like on this webinar.” I thoroughly agree with that boy’s … [Read more...] about Jan’s Corner 2010

Filed Under: Jan's Corner, Thoughts from PC'ers

Jan’s Corner 2009

November 5, 2009 by Pachyonychia

Happy New Year 2009! 1 January 2009 Happy New Year! As I’ve thought my hopes for PC Project and PC research in 2009, I’ve found it difficult to know exactly what I hope for. The reason why is because every year previously, the progress made by PC Project and PC research has always exceeded any … [Read more...] about Jan’s Corner 2009

Filed Under: Jan's Corner, Thoughts from PC'ers

Jan’s Corner 2008

November 5, 2008 by Pachyonychia

Taking a Break 1 January 2008 We're giving Janice a break from writing this monthly column. We hope you enjoy these entries from 2004-2007. We may post special submissions from PCers around the world from time to time. If you'd like to submit a column, please send to Jan'sCorner@pachyonychia.org. … [Read more...] about Jan’s Corner 2008

Filed Under: Jan's Corner, Thoughts from PC'ers

Jan’s Corner 2007

November 5, 2007 by Pachyonychia

Happy New Year 2007! 1 January 2007 Happy New Year! When I write a Jan’s Corner, I try to write about what’s on my mind in my PC life. My most overwhelming thought right now is that of incredible gratitude to the people who are working so hard for PC Project and PC research. I wish I could somehow … [Read more...] about Jan’s Corner 2007

Filed Under: Jan's Corner, Thoughts from PC'ers

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