Thoughts from PC'ers

Happy New Year 2006 1 January 2006 And happy it is! With plans already set in motion, this year appears even more promising and more wonderful than last year – if that is possible. Included in the 2006 plans are another patient meeting in Scotland, several important scientific gatherings for PC … [Read more...] about Jan’s Corner 2006

The Kiddos 1 January 2005 Okay, here's another entry about the kiddos. (For me, at this point in my life, I'm often more concerned with my children's “life with PC” than my own “life with PC.”) Now that the school year is half over, I'm reporting that it is going pretty well for Sam and Nate. (I … [Read more...] about Jan’s Corner 2005

Day-to-Day Care January 2004 This is Jan's response to a request to describe for a dermatologist the basic day-to-day care for herself and her boys. This is my own personal approach and should not be considered as 'advice' or medical instruction. It is just what I personally do for myself and … [Read more...] about Jan’s Corner 2004

Pachyonychia Congenita?? 22 September 2003 Pachyonychia Congenita? (PC) Thirty-five years it's been a part of my life and I can still barely spell it! How excited I am about this Pachyonychia Project! This is even more exciting than the introduction of the World Wide Web, when I could connect for … [Read more...] about Jan’s Corner 2003