We like to focus on all the things PC kids CAN do, because that list is long!
Please share with us all the things you as a PC kid are achieving despite having PC. Do you like to read? Ride a bike? Play with Legos? Let us know and send us a photo for this web page!
One PCer, Timmy, loves playing water polo. Having sore feet has no effect on being able to play, and he’s now representing his country!


PC Stories
Although PC is a rare disorder, there are individuals and families around the world living with it. Their stories are touching and illustrate the complexities and effects of this condition.