Also known as Olmsted syndrome PERP-pEDD is a rare genetic skin condition that causes extremely painful, thickened skin on the palms and soles, along with scaly patches around the mouth, nose, and eyes and in skin folds such as the armpits, breast, and groin.1 It is caused by … [Read more...] about PERP-pEDD (palmoplantar Epidermal Differentiation Disorder)
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Advancing PC Research at the SID Meeting
PC Project spent time in Chicago, IL, from May 13-15, at the Society for Investigative Dermatology Annual Meeting, which brings together thousands of skin researchers from around the world. Alongside numerous meetings with researchers and pharmaceutical companies, our exhibit table saw nearly … [Read more...] about Advancing PC Research at the SID Meeting
Putting Faces To Rare Skin Disease Research
Some researchers who work on rare skin diseases have never met an actual patient with the condition. That's why after our Epidermal Differentiation Disorders Symposium in Chicago, on the evening of May 12, 2026, we hosted a researcher networking dinner featuring a panel of EDD patients and family … [Read more...] about Putting Faces To Rare Skin Disease Research
PC/pEDD Medical Provider Directory
With patients across the United States and in over 60 countries, PC Project is often asked by patients or caregivers if we know of a doctor near them who knows even a little about their rare skin disorder. Physicians, we invite you to add your name to our Medical Provider Directory to connect … [Read more...] about PC/pEDD Medical Provider Directory
Advocating for PC on Capitol Hill
Many thanks to our three incredible PC advocates - Jolena Miller, Rylee Defebaugh, and Harlon Pickett - who represented PC and PC Project with the Coalition of Skin Diseases on Capitol Hill, May 18-19, 2026, speaking up for everyone living with PC and related painful palmoplantar Epidermal … [Read more...] about Advocating for PC on Capitol Hill
2025 Gratitude Wall
Introducing a new way to thank people who help make our critical mission possible. This season, we’re celebrating the incredible community behind PC Project — people like you who believe that no one should live in daily pain. We’re proud to share our brand-new 2025 Gratitude Wall, … [Read more...] about 2025 Gratitude Wall
Industry Sponsorship Opportunities
You are invited to partner with us for a full-day satellite symposium on rare Epidermal Differentiation Disorders (EDDs) on Tuesday, May 12, 2026, from 8:00 a.m. to 6:00 p.m., at the Hilton Chicago, held the day before the Society for Investigative Dermatology annual meeting. This premier EDD … [Read more...] about Industry Sponsorship Opportunities
PC Project at the 2025 SID
Exhibiting, networking, and educating experts about PC and the work of PC Project Why does PC Project exhibit, distribute brochures, and participate in select dermatology research conferences like the Society for Investigative Dermatology Meeting? 1. To network, collaborate, and make … [Read more...] about PC Project at the 2025 SID
