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Connection Circle: Parents

August 14, 2026

Join us Saturday, September 19th for parents helping parents.

Raising a child with PC and other pEDDs comes with unique challenges, and no one understands that journey better than the parents. PC Project’s first Connection Circle, especially for parents, will be held on Saturday, September 19, at 9am MT / 11am ET / 4pm BST.

This is an hour long virtual gathering where parents and caregivers of children can come together in a welcoming, supportive environment to connect, learn, and encourage one another.

Dr. Sancy Leachman

Whether you’re looking for practical tips on managing calluses and pain, ideas for daily care routines, advice for navigating school and activities, or simply a place to talk with people who understand, this Connection Circle is for you. Share what’s worked for your family, ask questions, exchange resources, and counsel together as you navigate the ups and downs of raising a child with a rare skin disease.

We will be joined by Dr. Sancy Leachman, who will share her expertise on what we’ve learned about helping children develop resilience while living with painful, rare, chronic conditions.

Come as you are, participate as much or as little as you’d like, and discover the comfort, confidence, and community that comes from connecting with other parents walking a similar path.

CLICK TO REGISTER

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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

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