Pachyonychia Congenita manifests in multiple ways even among those with the exact same mutation. One of the challenges with PC is its veritable nature and every person is unique. Some person may hurt more than another and we do not always know why.
When reviewing these tips, please remember that just because something works for one patient, it may not work for another. You will have to find out what works best for you.
Please discuss any care tips or treatments with your local doctor. This is not to substitute medical advice from your local doctor.
Blisters
In PC, mutations cause the keratin filaments to form incorrectly, creating cell fragility. This results in…
Calluses (Keratoderma)
Keratoderma is the medical term used to describe thick calluses on the bottom of the feet and…
Cracks
Cracks in the skin on hands or feet are annoying and cause additional pain. Cracks happen…
Cysts
Not all PC patients suffer from cysts. For those that do, cysts can be painful, irritating,…
Ears
Some patients especially PC-K6a children experience short sharp ear pain. Additional study is needed to learn…
Follicular Hyperkeratosis
Follicular Hyperkeratosis (FHK) is caused by keratin buildup around the hair follicles, which creates bumps on…
Itch
Deep itch happens under, around, or in the calluses and sometimes cysts. Like the painful calluses,…
Mouth, Tongue, & Larynx
Thick white build up on the tongue, sores on the corner of the mouth and issues…
Nails
Regular nail care is essential for those with PC. Patients use a variety of methods and…
Neurovascular Structures
Painful blood vessels or nerve endings grow in calluses and make trimming difficult and increasing the…
Pain
The veritable constant pain is the worst thing about PC. PC causes a unique type of…
