Focus on PC Patients
The many parts and pieces of this new website are designed to empower and educate patients by providing accurate up-to-date information as well as support. We want to give hope knowing that many leading scientists around the world are collaborating in this quest to develop effective treatments for the ultra rare disorder known as Pachyonychia Congenita.
We invite you to visit the website often to read new patient stories, to check on events and news, to access recent publications and learn of new developments. Explore the entire website, which is designed as a resource to provide easy access to information on Pachyonychia Congenita for you, for your family and friends, and for professionals who may be providing care.
