• Skip to main content
  • Skip to footer

Pachyonychia Congenita Project

Fighting for a cure. Connecting & helping patients. Empowering Research.

Donate
VIEW MENUMENU
  • Pachyonychia Congenita
        • What Is Pachyonychia Congenita?
          • Could I Have PC?
          • Getting Diagnosed
          • Genetics
          • Image Library
          • Glossary
          • Brochures
          • Patient Stories
        • Patient Registry (IPCRR)
          • Patient Registry Data
        • Understanding my Genetic Testing Results
          • K6a-pEDD-PC
          • K6b-pEDD-PC
          • K6c-pEDD-PC
          • K16-pEDD-PC
          • K17-pEDD-PC
          • Non-PC Palmoplantar EDDs
        • Managing and Caring For PC
          • Tips and Tools
          • Living With PC
          • PC & Children
          • Working With Medical Professionals
          • Family & Friends: How To Help
          • Video Library
  • For Professionals
        • For Professionals
          • International PC Consortium
          • Pharmaceutical Partners
          • Refer a Patient
          • Patient Registry (IPCRR)
            • Patient Registry Data
            • Non-PC Palmoplantar EDDs
          • Advocacy Partners
        • PC Research
          • Apply for a Grant
          • Awarded Grants
          • Published Research Articles
          • Clinical Trials
        • Patient Voices
          • Quality of Life
          • Patient Stories
          • Patient-Focused Drug Development Meeting
  • Ways To Give
        • Ways You Can Give
          • Donate
          • Donate Just Giving UK
          • Steady Relief Circle
          • Donor-Advised Fund
          • Giving Stock
          • Legacy Society
        • Raise Awareness
          • How You Can Help
          • Fundraising Ideas
          • Share Your Story
          • PC Advocates
          • Volunteer
        • 2025 Donor Gratitude Wall
  • News & Events
        • News
          • Current Newsletter
          • Newsletter Archives
          • Sign up for our Newsletter
        • Events
          • Patient Support Meetings
          • IPCC Meetings
          • Video Library
  • About Us
        • About PC Project
        • Medical and Scientific Advisory Board
        • Financial & Legal Information
        • Contact Us

Fundraising Archive

PC Stars

Here are only a few fundraising events that have been held over the years. We would love to feature your event. Please send information and photos about your event to info@pachyonychia.org.

Guess How Many Gumdrops & School Craft Sale

2013jellybeanjar

A family in Southwest Wales in 2013 held some fundraising activities at their son’s school. Their son did a guess how many gumdrops are in the jar and raised £32! The family also sold craft bits that they made as part of their new craft venture, Cinnamon and Timbit and sold £57 worth. This provided the family with the opportunity to speak to many parents and teachers about PC.

Annual PC Garage Sale

2013garagesale-mcgrathfilososands

The McGrath, Filoso & Sands families hold an annual garage/yard sale as their PC Awareness Kick off over Memorial Day weekend. In 2013 during their 2nd sale and despite stormy, cold and very windy weather at the beach, they were able to raise almost $300 during the 2-day garage/yard sale.

 

Cycle Ride

fmountain-bike

Kieren Eyles cycled from London to York. Read this short photographic story of the ride. Jul 2011

Cycle Ride

fbakertom-bikeride

Tom Baker cycled 300-miles around Wales to raise money for PC. Read this news article about PC. Sep 2010

Giving Tree

fschoolchristmastree

A family had a PC Giving Tree for Christmas at their school. Dec 2010

Donation Card

fdonation-card

One family sent a donation card to family and friends at the end of the year. Dec 2010

Chess Tournament

fchess

Beatrice Wannamaker held a annual Chess Tournament each year from 2010-2015 and gave proceeds to PC. Beatrice passed away unexpectedly in 2015 and is deeply missed.

Craft Sale

OLYMPUS DIGITAL CAMERA
OLYMPUS DIGITAL CAMERA

Judith Hutton has craft sales to raise funds. In 2008 she attended the Patient Support Meeting in Pitlochry and presented on her fundraising suceesses. Read Judith’s letter on how she raises funds. Jul 2008

Tractor & Cars

bob

Bob McLean sold a tractor, recycles metal and held a Car Rally Event and donated all proceeds to PC.

Birthday Party

OLYMPUS DIGITAL CAMERA
OLYMPUS DIGITAL CAMERA

This family holds a birthday party each year for their daughter who has PC. In lieu of presents they ask for donations to PC Project. Their daughter has a blast at the party and still gets presents from her parents.

Footer

PC Project logo in white
PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

  • Facebook
  • Instagram
  • LinkedIn
  • Twitter
  • YouTube

Sign up for our Newsletter

Loading

Support PC Project

There are many ways you can help improve the lives of those who suffer from Pachyonychia Congenita.

Learn More
  • Contact Us
  • About Us
  • Donate
  • Patient Registry

Copyright © 2026 PC Project. All rights reserved. Pachyonychia Congenita Project is a 501(c)(3) under federal tax guidelines. Using this site means you accept its terms as outlined in the disclaimer and privacy policy.