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Giving Tuesday 2025 – End the Pain

November 1, 2025

This Giving Tuesday help bring hope to those living with Pachyonychia Congenita (PC).

Every step hurts. For people living with Pachyonychia Congenita — a rare, painful genetic skin condition — even the simplest moments in life can feel impossible. Walking, standing, or going to school can mean excruciating pain. And beyond the physical toll, there’s the emotional weight: the shame of feeling different, the stares from strangers, and the isolation of a world that doesn’t understand.

But together, we can change that.

On Giving Tuesday (December 2, 2025), you have the power to make a difference. Your support fuels research, delivers answers, and builds a global community where no one with PC faces their pain — or their shame — alone.


What Your Gift Makes Possible

Your donation directly supports:

  • Groundbreaking research that brings us closer to a cure.
  • Faster, more accurate diagnoses so families get answers sooner.
  • Essential support and connection for patients and caregivers navigating this rare disease.
  • Awareness and advocacy to ensure PC families are seen, supported, and never forgotten.

Hear Their Stories

Max, PC Patient:

Every step feels like walking on broken glass — but the hardest part isn’t just the pain. It’s the shame of feeling like no one understands. Your support tells me I’m not alone.

Marie, Donor:

I give because I want to bring relief and hope to those living with pain every day. Together, we can change lives.

Hilary, Parent Advocate:

The hardest part is watching your child suffer and not being able to fix it. PC Project gives us hope.

Dr. Pierre Coulombe, Researcher:

We’re getting there — slowly but steadily. Your support fuels the science that will end this pain.


How You Can Help

  • Donate – Every dollar brings us closer to ending the pain and shame of PC.
  • Share – Spread the word by sharing this campaign with friends and family.
  • Join the Movement – Follow PC Project on social media and stay connected to the progress you’re making possible.

Together, We Can End the Pain

With your support, we can create a future where PC patients are rare but not forgotten — where no one suffers in silence, and where science, compassion, and community come together to end the pain once and for all.

Make a donation to help End the pain here
UK donors can donate through JustGiving to add Gift Aid

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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

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