• Skip to main content
  • Skip to footer

Pachyonychia Congenitia Project

Fighting for a cure. Connecting & helping patients. Empowering Research.

Donate
VIEW MENUMENU
  • Pachyonychia Congenita
        • What Is Pachyonychia Congenita?
          • Could I Have PC?
          • Getting Diagnosed
          • Genetics
          • Image Library
          • Glossary
          • Brochures
        • Patient Registry (IPCRR)
          • Patient Registry Data
        • Understanding my Genetic Testing Results
          • PC-K6a
          • PC-K6b
          • PC-K6c
          • PC-K16
          • PC-K17
          • Other Conditions With Painful Palmoplantar Keratoderma
        • Managing and Caring For PC
          • Tips and Tools
          • Living With PC
          • PC & Children
          • Working With Medical Professionals
          • Family & Friends: How To Help
          • Video Library
  • For Professionals
        • For Professionals
          • International PC Consortium
          • Pharmaceutical Partners
          • Refer a Patient
          • Patient Registry (IPCRR)
            • Patient Registry Data
            • Other Conditions With Painful Palmoplantar Keratoderma
          • Advocacy Partners
        • PC Research
          • Apply for a Grant
          • Published Research Articles
          • Clinical Trials
        • Patient Voices
          • Quality of Life
          • Patient Stories
          • Patient-Focused Drug Development Meeting
  • Ways To Give
        • Ways You Can Give
          • Donate
          • Donate Just Giving UK
          • PC Love Builders
          • Legacy Society (Planned Giving)
          • Combined Federal Campaign
          • Giving Stock
        • Raise Awareness
          • How You Can Help
          • Fundraising Ideas
          • Share Your Story
          • PC Advocates
          • Volunteer
  • News & Events
        • News
          • Current Newsletter
          • Newsletter Archives
          • Sign up for our Newsletter
        • Events
          • Patient Support Meetings
          • IPCC Meetings
          • Video Library
  • About Us
        • About PC Project
        • Medical and Scientific Advisory Board
        • Financial & Legal Information
        • Contact Us

PC Giving Tuesday #Worst2First4PC

November 1, 2020 by Pachyonychia

Celebrated on the Tuesday following the US Thanksgiving and entering its ninth year, #GivingTuesday is a global day of charitable giving fueled by the power of social media. For the past few years, PC Project has participated in Giving Tuesday and have successfully raised money to help fund our mission of finding a cure for PC.

Pachyonychia Congenita (PC) is an ultra-rare genetic autosomal dominant skin disorder. This disorder does not affect lifespan, but almost all PC patients experience constant pain. There is currently no effective, approved medical treatment or cure for PC.

PC Project is leading the way to help raise awareness for this disease, build our powerful registry for research and clinical trials, help PC patients navigate life with this terrible condition, and keep fighting for a cure.

This Giving Tuesday, we’re asking those living with PC to answer two questions…

What is the worst thing about living with PC?

 and

 What is the first thing you’ll do once we have a cure?

 To participate:

  1. Respond with your answers to the questions:

     

     

  2. Share your responses on social media with a text or video post, and be sure to tell your followers that you support PC Project. Don’t forget to use the hashtag #Worst2First4PC. 
  3. Make your contribution to PC Project, and then ask friends and family to join you with a donation this Giving Tuesday.

PC Project is leading the way for a cure. Medical research for orphan diseases is expensive and profit potential for drug companies is limited. PC Project fights 24/7/365 to make sure Pachyonychia Congenita – and each person who lives with the pain and stigma of this disease – never falls through the cracks.

Thank you for your support!

Donate to PC Project

  • Donate through Facebook donate button at 6 am MDT (1 pm UK time) on December 1st 
  • Donate with PayPal Giving Fund 
  • Donate with JustGiving UK for those in UK
  • Donate to @PCProject through Venmo App
  • Mail check or money order to: PC Project PO Box 17850, Holladay, UT 84117

 

Filed Under: Events, News

Footer

PC Project logo in white
PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

  • Facebook
  • Instagram
  • LinkedIn
  • Twitter
  • YouTube

Sign up for our Newsletter

Loading

Support PC Project

There are many ways you can help improve the lives of those who suffer from Pachyonychia Congenita.

Learn More
  • Contact Us
  • About Us
  • Donate
  • Patient Registry

Copyright © 2023 PC Project. All rights reserved. Pachyonychia Congenita Project is a 501(c)(3) under federal tax guidelines. Using this site means you accept its terms as outlined in the disclaimer and privacy policy.