PC Giving Tuesday #Worst2First4PC

Celebrated on the Tuesday following the US Thanksgiving and entering its ninth year, #GivingTuesday is a global day of charitable giving fueled by the power of social media. For the past few years, PC Project has participated in Giving Tuesday and have successfully raised money to help fund our mission of finding a cure for PC.

Pachyonychia Congenita (PC) is an ultra-rare genetic autosomal dominant skin disorder. This disorder does not affect lifespan, but almost all PC patients experience constant pain. There is currently no effective, approved medical treatment or cure for PC.

PC Project is leading the way to help raise awareness for this disease, build our powerful registry for research and clinical trials, help PC patients navigate life with this terrible condition, and keep fighting for a cure.

This Giving Tuesday, we’re asking those living with PC to answer two questions…

What is the worst thing about living with PC?


 What is the first thing you’ll do once we have a cure?

 To participate:

  1. Respond with your answers to the questions:


  2. Share your responses on social media with a text or video post, and be sure to tell your followers that you support PC Project. Don’t forget to use the hashtag #Worst2First4PC. 
  3. Make your contribution to PC Project, and then ask friends and family to join you with a donation this Giving Tuesday.

PC Project is leading the way for a cure. Medical research for orphan diseases is expensive and profit potential for drug companies is limited. PC Project fights 24/7/365 to make sure Pachyonychia Congenita – and each person who lives with the pain and stigma of this disease – never falls through the cracks.

Thank you for your support!

Donate to PC Project



Donate For GivingTuesday

Pachyonychia Congenita Project is a 501(c)3 qualified non-profit charity in the USA. Pachyonychia Congenita (PC) Project Europe is a qualified SCIO charity in the UK so those employed in the UK can request the Gift Aid (25% added to your donation) when you donate through JustGiving UK to PC Project Europe.

REMEMBER to check with your Employer to see if they match your charitable donation. Many companies have a matching program. This is an easy way to double your efforts.

Donate by Mail

Send your check or money order made out to PC Project to:
PC Project
P.O. Box 17850
Holladay, UT 84117

PC News and Events

Click here for PC Project News and Events webpage which includes announcements of upcoming events, important news information as well as links to all PC Patient NewsBrief issues and IPCC Newsletter issues.
PC Patient Registry
Learn why this international registry of PC patients is so crucial to the worldwide efforts to find treatments and a cure for PC