You are invited to participate in ground-breaking research that is being conducted by the International Alliance for Dermatology Patient Organizations (also known as GlobalSkin) in collaboration with researchers at Cardiff University (UK) and University Medical Centre Hamburg-Eppendorf (Germany).
The Global Research on the Impact of Dermatological Diseases (GRIDD) project aims to collect global data on the impact of dermatological conditions on patients’ lives. To collect this impact data, they have developed the new Patient-Reported Impact of Dermatological Diseases (PRIDD) measure, a scientifically sound questionnaire capable of measuring the impact of conditions of the skin, hair, nails and mucosa from the patient’s perspective. As a Member of GlobalSkin, Pachyonychia Congenita Project is
supportive of this important project.
You are the expert and your opinion matters! By participating, you will be helping to show clinicians, researchers, and policymakers the true impact of living with your dermatological condition. The data collected will help to inform areas of need for improved care, better treatment options, and more affordable medicine for dermatology patients globally.
GlobalSkin is looking for 10,000 people like you to take part in the study by completing a 10–20-minute online survey. They may also ask you to complete a shorter version of the survey six weeks after you complete the first one to assist in scientifically validating the new measure.
Who can participate?
- People who are over 18 years old
- People who have a dermatological condition
- People who can understand and read one of these 17 languages to a level sufficient to complete the survey independently (English, Arabic, Bengali, Simplified Chinese, Danish, Dutch, French, German, Hindi, Italian, Japanese, Portuguese, Russian, Serbian, Spanish, Swahili, or Vietnamese.)
The online survey is only open until September 28, 2023.
Please feel free to share with anyone who you think may be interested.
This research has received the required ethical approval from Cardiff University. Click for more information about GRIDD or GlobalSkin.