Living With PC Archive

Jan’s Corner

Click on a title to access the specific blog you want to see. You can also download the complete collection in E-book format.

Oct-03 Pachyonychia Congenita??
Oct-03 PC Diagnosis
Nov-03 Sore Feet/Painful Feet
Nov-03 Juan & Beto (crutches)
Dec-03 Balancing Life With PC
Dec-03 PC Project Goals
Jan-04 Day-to-Day Care
Jan-04 Pain vs. ‘Unsightly Nails’
Feb-04 “So…Did they find a cure?”
Feb-04 People Who Care
Mar-04 Big Brother
Mar-04 Doctor Visits
Apr-04 Spring Break
May-04 Genetic Testing
May-04 Infected Nails
Jul-04 Positive Aspects of PC
Aug-04 Back to School
Sep-04 The world has shrunk
Nov-04 School Bus: Problem Resolved
Dec-04 My Favorite Shoes
Dec-04 Merry Christmas! 
Jan-05 The Kiddos
Feb-05 I’m Slow
Mar-05 Grand Rounds
Apr-05 Wicking Socks!
May-05 Summertime…
Jun-05 Understanding PC
Jul-05 Uncle!
Aug-05 Limericks
Sep-05 Biking
Jan-06 Happy New Year 2006!
Feb-06 Discovering PC Project
Mar-06 Burning Feet
Jun-06 Still Learning about PC
Aug-06 Children with PC
Sep-06 Back to School
Oct-06 RNA Interference
Dec-06 Christmas Shopping
Jan-07 Happy New Year 2007!
Feb-07 Frustrated
Mar-07 Comparing with Others
Apr-07 Changes
May-07 IPCC Meeting
Jun-07 Patient Support Meeting
Jul-07 After all, we’re family
Aug-07 Josh Groban
Sep-07 More Changes
Oct-07 A rare disease can be inconvenient
Nov-07 Thanksgiving
Jan-08 Taking a Break
Aug-08 I’m Back!
Sep-08 Back to School… again
Oct-08 Back to School… For me!
Nov-08 Fall Weather
Dec-08 Different is OK
Jan-09 Happy New Year 2009!
Feb-09 Busy, busy, busy.
Apr-09 Spring Snow
May-09 Empathy
Jun-09 What They CAN Do
Aug-09 The Weather
Sep-09 Patient Support Meeting
Oct-09 Vacation Choices
Dec-09 Holiday Time PC Survival
Dec-09 Coping with PC     
Jan-10 Happy New Year 2010!
Feb-10 A True Love Story for Valentine’s Day
Mar-10 PC Pain
Apr-10 Life Is Good
May-10 Fast, Faster, Fastest
Sep-10 Summer 2010
Nov-10 The Advantage of a Wheelchair
Dec-10 Christmas 2010
Mar-11 Getting Old
Jun-11 Springtime 2011
Jul-11 Vacation Worries
Sep-11 Back To School
Nov-11 It Could Be Worse
Dec-11 Count Your Blessings
Jan-12 PC Keeps Me Guessing
Jun-12 Summertime
Dec-12 A Tribute To My Dad












PC News and Events

Click here for PC Project News and Events webpage which includes announcements of upcoming events, important news information as well as links to all PC Patient NewsBrief issues and IPCC Newsletter issues.
PC Patient Registry
Learn why this international registry of PC patients is so crucial to the worldwide efforts to find treatments and a cure for PC