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Join the PC Project Board of Trustees

April 24, 2025

Help Lead the Future of PC Research and Support!

PC Project is growing, and we need dedicated, passionate individuals to join our Board of Directors! We currently have five open, non-paid board positions, and we are inviting members of our community to apply or nominate someone who would be a great fit.

Why Join the Board?

As a board member, you will play a key role in shaping the future of PC Project by providing leadership, expertise, and support for our mission. This is an opportunity to make a meaningful impact on the lives of those affected by Pachyonychia Congenita while working alongside a team of committed professionals and advocates.

Select Open Positions:

  • Treasurer (Immediate Need) – Oversee PC Project’s finances, budget, and fiscal policies.
  • Basic Science/Medicine/Genetics Expertise – Provide insight and guidance on clinical and research efforts.
  • Nonprofit Organization Experience – Help strengthen our operational effectiveness.

Other Expertise Needed:

  • Marketing and/or Fundraising Experience – Enhance awareness and outreach for PC Project.
  • Pharmaceutical Industry Experience – Assist in navigating partnerships and advancements in treatment.
  • Education Experience – Assist with development of targeted materials to help educate the PC community (ie, patients, caregivers, and healthcare professionals).
  • General expertise or experience that will allow you to help further the mission of PC Project.

What Do Board Members Do?

Board members commit to attending meetings, participating in committee work, and supporting fundraising efforts. They stay informed about key initiatives, collaborate with fellow board members, and contribute their expertise to advance PC Project’s mission.

How You Can Get Involved

If you or someone you know has the experience and passion to serve on the PC Project Board, we encourage you to apply or submit a nomination today!

Together, we can make a difference in the lives of those affected by PC. Thank you for your support and commitment to our community!

Best,
Jack Padovano
Board Chair
PC Project

Apply or submit a nomination

If you live in Europe and are interested in serving on PC Project Europe’s Board, please apply and your application will be reviewed by that board.


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PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

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