Be one of the givers who sustains the mission of PC Project
Supporters like you are the reason why PC Project exists. Your generosity helps us provide care and support to PC patients and their families. And while all donors matter, there’s a special type of donor that chooses to make PC Project’s mission a regular part of their lives — the PC Love Builder.
PC Love Builders partner with PC Project through their generous monthly donations. Such commitment is essential to sustaining our momentum toward three goals:
- Developing better treatments for PC
- Easing the physical and emotional pain of PC patients
- Finding a cure
Each year we announce a new supporter challenge to raise awareness about the PC Love Builders recurring giving program and invite supporters like you to join this special group of donors.
This year, we want you to hear directly from the Love Builders themselves about why they give and what it means to them. Here’s a few recent messages we received from Love Builders.
I am so proud to be a PC Project Love Builder and donor. Seeing you and everyone at PC Project working so hard for the PC community day in and day out inspired me to join. I want you to feel my unwavering support like I feel yours.
Every time I read an update about a research grant given to scientists working toward a cure for PC, I know that my contribution is making a difference. And meeting PC patients who have received PC Project sponsorships to attend their very first Patient Support Meeting touches my heart every single time.
I was 27 when I was diagnosed with PC — the first of at least five generations of PCers in my family to have a diagnosis. We know what it’s like to feel alone with PC. The fact that I’m helping others find our PC community so they don’t have to feel alone is deeply meaningful to me.
As long as I’m financially able to, I will continue to support PC Project as a Love Builder. I am excited by the momentum you’ve all created and optimistic that together we can find a cure!
Love and gratitude,
Juli
I’ll be frank. Old me would have thought a name like PC Love Builder was a bit corny. But now I’m honored to be called one.
My wife, daughter, and son all have PC (the K6b mutation). But until their diagnosis — thanks to PC Project’s free genetic testing — we didn’t know what was wrong.
I’m not proud to admit that before their diagnosis I would often get annoyed or frustrated with them for not being able to walk as far as me or do certain activities I wanted us to do. I think deep down I was afraid that something was wrong but I felt powerless to help them.
Thanks to PC Project, we now have a better understanding of what it takes to live happy lives with PC. PC Project has brought us all closer, which is a gift I will always cherish.
That’s why I became a PC Love Builder. I feel good knowing that my donations each month help keep PC Project going and the research continuing.
We are all hoping for a cure soon, especially for those with even more painful mutations than K6b. But until then I know that whenever someone with PC reaches out to PC Project for support, my contribution is already helping.
Thank you for caring about my family and every other person whose life is better because of PC Project. I hope we can meet one day as fellow PC Love Builders so I can thank you in person.
Building love,
Kevin Burr
Proud PC Love Builder
We first learned of PC Project in seeking help for daughter, Audrey. And they have helped us tremendously — identifying Audrey’s mutation, supporting us as parents caring for a child with PC, introducing us to other PC families, and so much more.
But what PC Project is doing to advance PC treatments is truly amazing.
One of the most emotional days of my life was seeing the testimonials at the FDA hearing on PC in 2018. Witnessing the power of PCers coming together to present their stories, and how moved the FDA officials were by those stories … that day really affected me. It also led the FDA to fast track the first drug trial ever for a potential PC treatment.
If not for PC Project, who else would be out there advocating for our daughter and pushing PC research forward?
PC Project is the only organization in the world 100% focused on helping people with Pachyonychia Congenita, advancing research into PC treatments, and working to find a cure in our lifetime.
That’s why my wife and I decided to join PC Love Builders and make PC Project the focus of our charitable giving. We know that our monthly donations help provide a reliable stream of funding that PC Project can count on.
In addition, we ask our family, friends, and broader community to support PC Project every year on Giving Tuesday. And we proudly promote the PC Love Builders Challenge every year.
On behalf of myself, my wife, and my daughter Audrey, thank you for your support of PC Project. Caring people like you are the reason PC Project thrives.
My deepest gratitude,
Aaron Klein
PC parent and Love Builder
Messages like this warm my heart. When I’m tired and my feet hurt and PC Project hits another bump in the road, I take inspiration from dedicated partners like Juli, Kevin and Audrey.
Over the next three days, our goal is to find 50 people who care deeply about our mission to become new or upgraded PC Love Builders during the 2024 PC Love Builders Challenge.
Will you join this select group of donors and become a PC Love Builder today?
As a PC Love Builder, your monthly gift is revenue we can count on to provide invaluable resources like free diagnostic genetic testing, phone consultations, PC Patient Support Meetings, and support for new PC treatments and a cure in our lifetime. Click here to become the newest member of the PC Love Builders team!
If you are employed in the UK and would like to have Gift Aid included on your donation, please set up your recurring donation at https://www.justgiving.com/pcproject-europe
