Our professional group of experts who guide PC Project and who genuinely care about patients
Eli Sprecher, MD, PhD is the Chair of the MSAB and the International PC Consortium (IPCC). Within the MSAB are active working committees who meet regularly and perform specific roles, including the IPCC Steering Committee.

Pierre A. Coulombe, PhD
University of Michigan, Ann Arbor, MI, USA
IPCC Steering Committee
Research Committee Lead




C. David Hansen, MD
University of Utah, Salt Lake City, UT, USA
IPCC Steering Committee
IPCC Genetics Team
IPCRR Principal Investigator


Robyn P. Hickerson, PhD
Ten Bio, Kannapolis, NC, USA & University of Dundee, Dundee Scotland UK
IPCC Steering Committee

Alain A. Hovnanian, MD, PhD
University of Paris, Paris, France
IPCC Steering Committee
IPCC Genetics Team







Edel O’Toole, MD, PhD, FRCPI, FRCP
Queen Mary University of London, London, England UK
IPCC Steering Committee
IPCC Genetics Team




Eli Sprecher, MD, PhD
Tel Aviv Sourasky Medical Center, Tel Aviv, Israel
Chair, IPCC/MSAB
IPCC Steering Committee
IPCC Genetics Team



Join the International Pachyonychia Congenita Consortium (IPCC)
PC LEGENDS: Honorary Members
Thanks to those who advanced research and helped build the foundation for PC Project. The organization is where it is today because of the sacrifice and contribution of each person. The following individuals will be forever in our hearts:
Sherri J. Bale, PhD
Peter R. Hull, MD, PhD, FFDERM, FRCP
W.H. Irwin McLean, PhD, DSc, FRS, FRSE, FMedSci
Leonard M. Milstone, MD
Mary Schwartz, Founder
Frances Smith, PhD
Jean Y. Tang, MD, PhD
Maurice A.M. van Steensel, MD, PhD