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Pachyonychia Congenitia Project

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Medical and Scientific Advisory Board

Our professional group of experts who guide PC Project and who genuinely care about patients

Eli Sprecher, MD, PhD is the Chair of the MSAB and the International PC Consortium (IPCC). Within the MSAB are active working committees who meet regularly and perform specific roles, including the IPCC Steering Committee.

Pierre A. Coulombe, PhD

University of Michigan, Ann Arbor, MI, USA

IPCC Steering Committee
Research Committee Lead

    Philip D. Gard, MBChB

    England UK

      Tracy L. Funk, MD

      Oregon Health Science University, Portland, OR, USA

        Antoni Gostynski, MD

        Maastricht University Medical Center, Maastricht, Netherlands

        IPCC Genetics Team

          C. David Hansen, MD

          University of Utah, Salt Lake City, UT, USA

          IPCC Steering Committee
          IPCC Genetics Team
          IPCRR Principal Investigator

            Ángela Hernández Martín, MD

            Hospital Infantil Universitario del Niño Jesús, Madrid, Spain

              Robyn P. Hickerson, PhD

              Ten Bio, Kannapolis, NC, USA & University of Dundee, Dundee Scotland UK

              IPCC Steering Committee

                Alain A. Hovnanian, MD, PhD

                University of Paris, Paris, France

                IPCC Steering Committee
                IPCC Genetics Team

                  Roger L. Kaspar, PhD

                  Ayni Therapeutics, Santa Cruz, CA, USA

                  IPCC Steering Committee

                    David Kelsell, PhD

                    Queen Mary University of London, London, England UK

                    Research Committee

                      Birgitte Lane, PhD, FRSE, FMedSci

                      Institute of Medical Biology, Singapore, Singapore

                        Sancy A. Leachman, MD, PhD

                        Oregon Health Science University, Portland, OR, USA

                          Evelyn Lilly, MD

                          Massachusettes General Hospital, Danvers, MA, USA

                            John A. McGrath, MD, PhD

                            King’s College, London, England UK

                              Edel O’Toole, MD, PhD, FRCPI, FRCP

                              Queen Mary University of London, London, England UK

                              IPCC Steering Committee
                              IPCC Genetics Team

                                Amy S. Paller, MD

                                Northwestern University, Chicago, IL, USA

                                  Michael Polydefkis, MD

                                  Johns Hopkins University, Baltimore, MD, USA

                                    Dennis R. Roop, PhD

                                    University of Colorado, Aurora, CO, USA

                                      Eli Sprecher, MD, PhD

                                      Tel Aviv Sourasky Medical Center, Tel Aviv, Israel

                                      Chair, IPCC/MSAB
                                      IPCC Steering Committee
                                      IPCC Genetics Team

                                        Peter Steijlen, MD

                                        Maastricht University Medical Center, Maastricht, Netherlands

                                          Joyce M. Teng, PhD

                                          Stanford University, Palo Alto, CA, USA

                                            Join the International Pachyonychia Congenita Consortium (IPCC)

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                                            PC LEGENDS: Honorary Members
                                            Thanks to those who advanced research and helped build the foundation for PC Project.  The organization is where it is today because of the sacrifice and contribution of each person. The following individuals will be forever in our hearts:
                                            Sherri J. Bale, PhD
                                            Peter R. Hull, MD, PhD, FFDERM, FRCP
                                            W.H. Irwin McLean, PhD, DSc, FRS, FRSE, FMedSci
                                            Leonard M. Milstone, MD
                                            Mary Schwartz, Founder
                                            Frances Smith, PhD
                                            Jean Y. Tang, MD, PhD
                                            Maurice A.M. van Steensel, MD, PhD

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                                            PACHYONYCHIA CONGENITA PROJECT

                                            P.O. Box 17850
                                            Holladay, UT 84117

                                            info@pachyonychia.org

                                            801-987-8758

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