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Pachyonychia Congenita Project

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Medical and Scientific Advisory Board

Our professional group of experts who guide PC Project and who genuinely care about patients

Eli Sprecher, MD, PhD, is the Chair of the MSAB and the International PC Consortium (IPCC). Within the MSAB are active working committees that meet regularly and perform specific roles, including the IPCC Steering Committee.

Pierre A. Coulombe, PhD

University of Michigan, Ann Arbor, MI, USA

IPCC Steering Committee
Research Committee Lead

    Christine Bodemer, MD, PhD

    Hopital Necker Enfants Malades Paris

      Stine Bjørn Gram, MD, PhD

      Odense University Hospital, Odense, Denmark

      IPCC Genetics Team

        Christopher Bunick, MD, PhD

        Yale School of Medicine, New Haven, CT, USA

          Keith Choate, MD, PhD

          Yale School of Medicine, New Haven, CT, USA

            Tracy L. Funk, MD

            Oregon Health Science University, Portland, OR, USA

              Antoni Gostynski, MD

              Maastricht University Medical Center, Maastricht, Netherlands

              IPCC Genetics Team

                C. David Hansen, MD

                University of Utah, Salt Lake City, UT, USA

                IPCC Steering Committee
                IPCC Genetics Team
                IPCRR Principal Investigator

                  Ángela Hernández Martín, MD

                  Hospital Infantil Universitario del Niño Jesús, Madrid, Spain

                    Robyn P. Hickerson, PhD

                    Ten Bio, Kannapolis, NC, USA & University of Dundee, Dundee Scotland UK

                    IPCC Steering Committee Research Committee

                      Alain A. Hovnanian, MD, PhD

                      University of Paris, Paris, France

                      IPCC Steering Committee
                      IPCC Genetics Team Research Committee

                        Roger L. Kaspar, PhD

                        Ayni Therapeutics, Santa Cruz, CA, USA

                        IPCC Steering Committee

                          David Kelsell, PhD

                          Queen Mary University of London, London, England UK

                          Research Committee

                            Sancy A. Leachman, MD, PhD

                            University of Utah, Salt Lake City, UT, USA

                              Evelyn Lilly, MD

                              Massachusettes General Hospital, Danvers, MA, USA

                                Irwin McLean, PhD, DSc, FRS, FRSE, FMedSci

                                Scotland UK

                                  Edel O’Toole, MD, PhD, FRCPI, FRCP

                                  Queen Mary University of London, London, England UK

                                  IPCC Steering Committee
                                  IPCC Genetics Team

                                    Amy S. Paller, MD

                                    Northwestern University, Chicago, IL, USA

                                    IPCC Genetics Team

                                      Eli Sprecher, MD, PhD

                                      Tel Aviv Sourasky Medical Center, Tel Aviv, Israel

                                      Chair, IPCC/MSAB
                                      IPCC Steering Committee
                                      IPCC Genetics Team

                                        Joyce M. Teng, MD, PhD

                                        Stanford University, Palo Alto, CA, USA

                                        IPCC Steering Committee

                                          Peter van den Akker, MD, PhD

                                          University Medical Centre Groningen, the Netherlands

                                          IPCC Genetics Team

                                            Join the International Pachyonychia Congenita Consortium (IPCC)

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                                            PC LEGENDS: Honorary Members
                                            Thanks to those who advanced research and helped build the foundation for PC Project.  The organization is where it is today because of the sacrifice and contribution of each person. The following individuals will be forever in our hearts:
                                            Sherri J. Bale, PhD
                                            Peter R. Hull, MD, PhD, FFDERM, FRCP
                                            Leonard M. Milstone, MD
                                            Birgitte Lane, PhD, FRSE, FMedSci
                                            Mary Schwartz, Founder
                                            Frances Smith, PhD
                                            Peter Steijlen, MD
                                            Jean Y. Tang, MD, PhD
                                            Maurice A.M. van Steensel, MD, PhD

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                                            PACHYONYCHIA CONGENITA PROJECT

                                            P.O. Box 17850
                                            Holladay, UT 84117

                                            info@pachyonychia.org

                                            801-987-8758

                                            EIN 68-0567493

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