• Skip to main content
  • Skip to footer

Pachyonychia Congenitia Project

Fighting for a cure. Connecting & helping patients. Empowering Research.

Donate
VIEW MENUMENU
  • Pachyonychia Congenita
        • What Is Pachyonychia Congenita?
          • Could I Have PC?
          • Getting Diagnosed
          • Genetics
          • Image Library
          • Glossary
          • Brochures
        • Patient Registry (IPCRR)
          • Patient Registry Data
        • Understanding my Genetic Testing Results
          • PC-K6a
          • PC-K6b
          • PC-K6c
          • PC-K16
          • PC-K17
          • Other Conditions With Painful Palmoplantar Keratoderma
        • Managing and Caring For PC
          • Tips and Tools
          • Living With PC
          • PC & Children
          • Working With Medical Professionals
          • Family & Friends: How To Help
          • Video Library
  • For Professionals
        • For Professionals
          • International PC Consortium
          • Pharmaceutical Partners
          • Refer a Patient
          • Patient Registry (IPCRR)
            • Patient Registry Data
            • Other Conditions With Painful Palmoplantar Keratoderma
          • Advocacy Partners
        • PC Research
          • Apply for a Grant
          • Published Research Articles
          • Clinical Trials
        • Patient Voices
          • Quality of Life
          • Patient Stories
          • Patient-Focused Drug Development Meeting
  • Ways To Give
        • Ways You Can Give
          • Donate
          • Donate Just Giving UK
          • PC Love Builders
          • Legacy Society (Planned Giving)
          • Combined Federal Campaign
          • Giving Stock
        • Raise Awareness
          • How You Can Help
          • Fundraising Ideas
          • Share Your Story
          • PC Advocates
          • Volunteer
  • News & Events
        • News
          • Current Newsletter
          • Newsletter Archives
          • Sign up for our Newsletter
        • Events
          • Patient Support Meetings
          • IPCC Meetings
          • Video Library
  • About Us
        • About PC Project
        • Medical and Scientific Advisory Board
        • Financial & Legal Information
        • Contact Us

Pachyonychia Congenita Events

2023 IPCC Symposium at ISID

With excellent presentations, a room packed with researchers, and many more standing in the back, our annual meeting of scientific…

Continue Reading 2023 IPCC Symposium at ISID

Special PPK Session at AAD Featuring PC Dermatologists

At the 2023 American Academy of Dermatology (AAD) Association Annual Meeting, PC and other painful conditions with PPK were featured…

Continue Reading Special PPK Session at AAD Featuring PC Dermatologists

2023 New Orleans Patient Support Meeting

March 15-17, 2023Hilton Garden Inn New Orleans Convention Center PC patients and their loved ones, along with PC scientists and…

Continue Reading 2023 New Orleans Patient Support Meeting

2022 Virtual PC Patient Support Meeting

STRONGER TOGETHER Date: Saturday, November 19, 2022Time: 8am-12pm MT (10am-2pm ET; 3pm-7pm UK time) The PC community gathered together for…

Continue Reading 2022 Virtual PC Patient Support Meeting

ESDR Meeting Amsterdam

PC Project was invited to be in a patient village and participate with the ESDR (European Society of Dermatology Research)…

Continue Reading ESDR Meeting Amsterdam

2022 PC Leadership Planning Meeting

Key members of PC Project Medical and Scientific Advisory Board met in Amsterdam on September 28, 2022 for a robust…

Continue Reading 2022 PC Leadership Planning Meeting

Stronger Together #GivingTuesday 2022

Please join us for our #GivingTuesday campaign to spread awareness about PC and let others know how important this cause…

Continue Reading Stronger Together #GivingTuesday 2022

2022 Amsterdam Mini PC Gathering

Because PC Project representatives were in Amsterdam for the European Society for Dermatological Research (ESDR) Annual Meeting, they couldn’t resist…

Continue Reading 2022 Amsterdam Mini PC Gathering

PC Fundraiser: Quinoa Harvest and Andean Festival

What do a Quinoa Harvest and Andean Festival and PC Project have in common? They’re both all about improving the…

Continue Reading PC Fundraiser: Quinoa Harvest and Andean Festival

2022 Minneapolis PC Patient Gathering

PC Project spent a few days in the land of 10,000 lakes with a group of PC friends. On August…

Continue Reading 2022 Minneapolis PC Patient Gathering

2022 Hybrid IPCC Symposium

The 18th Annual International Pachyonychia Congenita Consortium (IPCC) Symposium Learn More Wednesday, May 18, 2022 8am-12pm PDT (9am-1pm MDT, 10am-2pm…

Continue Reading 2022 Hybrid IPCC Symposium

2021 Virtual PC Patient Support Meeting

Date: Saturday, November 20, 2021Time: 8am-12pm MT (10am-2pm ET; 3pm-7pm UK time) We met with the PC community for a…

Continue Reading 2021 Virtual PC Patient Support Meeting

2021 IPCC Symposium June 28-29 VIRTUAL

All researchers, clinicians, and industry representatives interested in PC (and other rare skin conditions with PPK) are warmly invited by…

Continue Reading 2021 IPCC Symposium June 28-29 VIRTUAL

2020 PC Teen Web Meeting Nov 21

All PC teenagers invited to join a virtual meeting to discuss issues, challenges, and positive aspects of life with PC.…

Continue Reading 2020 PC Teen Web Meeting Nov 21

2020 France PC Patient Support Meeting Postponed

This announcement will come as no surprise, but due to the COVID-19 pandemic, PC Project is postponing the 2020 France…

Continue Reading 2020 France PC Patient Support Meeting Postponed

2020 IPCC Symposium May 12-13

CANCELLED: International Pachyonychia Congenita Consortium (IPCC) Symposium: Due to the COVID-19 pandemic, PC Project has cancelled the International PC Consortium…

Continue Reading 2020 IPCC Symposium May 12-13

2019 Boston Patient Support Meeting June 20-22

Boston PC Patient Support MeetingJune 20-22, 2019Hilton Boston Logan Airport Hotel Thursday,  June 20th – welcome dinner starts at 6:30…

Continue Reading 2019 Boston Patient Support Meeting June 20-22

2019 IPCC Annual Meeting May 7-8

International Pachyonychia Congenita Consortium (IPCC) SymposiumMay 7-8, 2019Hilton Chicago Hotel in conjunction with theSociety for Investigative Dermatology (SID) Annual Meeting…

Continue Reading 2019 IPCC Annual Meeting May 7-8

2018 London England Patient Support Meeting Oct 19-21

2018 London England—PC Patient Support MeetingOctober 19-21, 2018Park Inn by Radisson London Heathrow This meeting is sponsored by Palvella Therapeutics,…

Continue Reading 2018 London England Patient Support Meeting Oct 19-21

2017 IPCC Symposium Apr 25-26

The IPCC meeting will take place on the afternoon of 25th April and morning of 26th April, at the SID…

Continue Reading 2017 IPCC Symposium Apr 25-26

2017 PC Patient Support Meeting Jun 15-17

The 2017 Patient Support Meeting will be held June 15, 16 & 17, 2017 in Salt Lake City, Utah at…

Continue Reading 2017 PC Patient Support Meeting Jun 15-17

Footer

PC Project logo in white
PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

  • Facebook
  • Instagram
  • LinkedIn
  • Twitter
  • YouTube

Sign up for our Newsletter

Loading

Support PC Project

There are many ways you can help improve the lives of those who suffer from Pachyonychia Congenita.

Learn More
  • Contact Us
  • About Us
  • Donate
  • Patient Registry

Copyright © 2023 PC Project. All rights reserved. Pachyonychia Congenita Project is a 501(c)(3) under federal tax guidelines. Using this site means you accept its terms as outlined in the disclaimer and privacy policy.