New to PC Project?
Join PC Project CEO Janice Schwartz and other new families for a relaxed, informal conversation where you’ll learn about the…
PC Project Scientific Session at ESDR 2026
PC Project will have a special scientific session during the European Society for Dermatological Research (ESDR) Annual Meeting on September…
Putting Faces To Rare Skin Disease Research
Some researchers who work on rare skin diseases have never met an actual patient with the condition. That’s why after…
Continue Reading Putting Faces To Rare Skin Disease Research
2026 Patient Support Meeting
Join patients, families, clinicians, researchers, and advocates from around the world for three days of education, connection, research updates, practical…
2026 Epidermal Differentiation Disorders Symposium
On May 12, 2026, researchers, clinicians, trainees, patient advocates, industry representatives, and NIH leaders gathered at the Hilton Chicago for…
Continue Reading 2026 Epidermal Differentiation Disorders Symposium
PC Project Town Hall Nov 2025
Saturday, November 15, 2025 10am MT / 12pm ET Zoom Meeting The meeting began with welcoming attendees from around the…
PC Research Session at the 2025 ESDR
A Landmark Meeting Focused on PC PC Project participated in the 2025 European Society for Dermatology Research (ESDR) Annual Meeting…
PC Project Town Hall Saturday, August 16, 2025
An overview of PC Project and an update of what is currently being accomplished was shared during the Aug 12…
Continue Reading PC Project Town Hall Saturday, August 16, 2025
Pilot Study for PC and TRPV3 Patients
UK Patients in the International PC Research Registry helped to develop endpoints for clinical trials UK registry patients gathered in…
2025 IPCC Symposium
Our annual collaborative event with leading scientists in the rare genetic skin disease space PC Project held the annual IPCC…
2025 PC Patient Support Meeting
Learning, laughter, and love in San Diego, California, as we shared, taught and inspired one another What a fantastic time…
2024 Lisbon PC Patient Support Meeting
Where patients, loved ones, physicians, and researchers gathered to learn from and be inspired by one another Date: September 1-3,…
2024 IPCC & DHHD Symposia
Two synergistic scientific meetings joined forces to understand rare skin disorders and advance research and treatments for patients who suffer…
PC Town Hall March 23, 2024
A wonderful gathering with questions from our global PC community answered by our PC experts. This virtual Town Hall was…
#MyPCDream | GivingTuesday 2023
The global GivingTuesday means so much to us. For this one day each year, generous people from over the world…
Atlanta: PC Lunch and Gathering
Members of our community met for several hours to eat, talk, and share encouragement and experiences about living with PC.…
Quinoa Harvest & Andean Festival 2023
A Fundraiser for PC near Bryce Canyon National Park PC researcher, Dr. Roger Kaspar, and his family hosted a fun…
DC Patient Gathering
PC Project representatives attended a NIAMS Coalition Meeting in Washington DC in September, and while we were in town, were…
PC Town Hall August 26, 2023
Thanks to those of you who were able to join us at the PC Project Town Hall event this past…
2023 IPCC Symposium
With excellent presentations, a room packed with researchers, and many more standing in the back, our annual meeting of scientific…
Special PPK Session at AAD Featuring PC Dermatologists
At the 2023 American Academy of Dermatology (AAD) Association Annual Meeting, PC and other painful conditions with PPK were featured…
Continue Reading Special PPK Session at AAD Featuring PC Dermatologists
2023 New Orleans Patient Support Meeting
March 15-17, 2023Hilton Garden Inn New Orleans Convention Center PC patients and their loved ones, along with PC scientists and…
2022 Virtual PC Patient Support Meeting
STRONGER TOGETHER Date: Saturday, November 19, 2022Time: 8am-12pm MT (10am-2pm ET; 3pm-7pm UK time) The PC community gathered together for…
ESDR Meeting Amsterdam
PC Project was invited to be in a patient village and participate with the ESDR (European Society of Dermatology Research)…
2022 PC Leadership Planning Meeting
Key members of PC Project Medical and Scientific Advisory Board met in Amsterdam on September 28, 2022 for a robust…
Stronger Together #GivingTuesday 2022
Please join us for our #GivingTuesday campaign to spread awareness about PC and let others know how important this cause…
2022 Amsterdam Mini PC Gathering
Because PC Project representatives were in Amsterdam for the European Society for Dermatological Research (ESDR) Annual Meeting, they couldn’t resist…
PC Fundraiser: Quinoa Harvest and Andean Festival 2022
What do a Quinoa Harvest and Andean Festival and PC Project have in common? They’re both all about improving the…
Continue Reading PC Fundraiser: Quinoa Harvest and Andean Festival 2022
2022 Minneapolis PC Patient Gathering
PC Project spent a few days in the land of 10,000 lakes with a group of PC friends. On August…
PC Town Hall Meeting
5 April 2022 – PC Town Hall The third PC Town hall meeting was held Tuesday, April 5, 2022 at…
2022 Hybrid IPCC Symposium
The 18th Annual International Pachyonychia Congenita Consortium (IPCC) Symposium Learn More Wednesday, May 18, 2022 8am-12pm PDT (9am-1pm MDT, 10am-2pm…
2021 Virtual PC Patient Support Meeting
Date: Saturday, November 20, 2021Time: 8am-12pm MT (10am-2pm ET; 3pm-7pm UK time) We met with the PC community for a…
2021 IPCC Symposium June 28-29 VIRTUAL
All researchers, clinicians, and industry representatives interested in PC (and other rare skin conditions with PPK) are warmly invited by…
2020 PC Teen Web Meeting Nov 21
All PC teenagers invited to join a virtual meeting to discuss issues, challenges, and positive aspects of life with PC.…
PC Giving Tuesday #Worst2First4PC
Celebrated on the Tuesday following the US Thanksgiving and entering its ninth year, #GivingTuesday is a global day of charitable…
Pachyonychia Congenita Town Hall May 19, 2020
The first-ever PC Project town hall meeting was held on Thursday, March 19. PC Project shared the basic fundamentals of…
Continue Reading Pachyonychia Congenita Town Hall May 19, 2020
2020 France PC Patient Support Meeting Postponed
This announcement will come as no surprise, but due to the COVID-19 pandemic, PC Project is postponing the 2020 France…
Continue Reading 2020 France PC Patient Support Meeting Postponed
2020 IPCC Symposium May 12-13
CANCELLED: International Pachyonychia Congenita Consortium (IPCC) Symposium: Due to the COVID-19 pandemic, PC Project has cancelled the International PC Consortium…
2019 Boston Patient Support Meeting June 20-22
Boston PC Patient Support MeetingJune 20-22, 2019Hilton Boston Logan Airport Hotel Thursday, June 20th – welcome dinner starts at 6:30…
Continue Reading 2019 Boston Patient Support Meeting June 20-22
2019 IPCC Annual Meeting May 7-8
International Pachyonychia Congenita Consortium (IPCC) SymposiumMay 7-8, 2019Hilton Chicago Hotel in conjunction with theSociety for Investigative Dermatology (SID) Annual Meeting…
2018 London England Patient Support Meeting Oct 19-21
2018 London England—PC Patient Support MeetingOctober 19-21, 2018Park Inn by Radisson London Heathrow This meeting is sponsored by Palvella Therapeutics,…
Continue Reading 2018 London England Patient Support Meeting Oct 19-21
2017 IPCC Symposium Apr 25-26
The IPCC meeting will take place on the afternoon of 25th April and morning of 26th April, at the SID…
2017 PC Patient Support Meeting Jun 15-17
The 2017 Patient Support Meeting will be held June 15, 16 & 17, 2017 in Salt Lake City, Utah at…
