Pachyonychia Congenita Town Hall May 19, 2020

The first-ever PC Project town hall meeting was held on Thursday, March 19. PC Project shared the basic fundamentals of PC, what living with PC means, and where we are with the Valo trial and other potential studies in the future. Click below to watch the recording of the meeting.

Also, please click here to complete an evaluation of the meeting to help us focus the next town hall on the topics that interest you most and to let us know about the actions you’ve taken as an advocate for PC.

PC News and Events

Click here for PC Project News and Events webpage which includes announcements of upcoming events, important news information as well as links to all PC Patient NewsBrief issues and IPCC Newsletter issues.
 
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PC Patient Registry
Learn why this international registry of PC patients is so crucial to the worldwide efforts to find treatments and a cure for PC