• Skip to main content
  • Skip to footer

Pachyonychia Congenita Project

Fighting for a cure. Connecting & helping patients. Empowering Research.

Donate
VIEW MENUMENU
  • Pachyonychia Congenita
        • What Is Pachyonychia Congenita?
          • Could I Have PC?
          • Getting Diagnosed
          • Genetics
          • Image Library
          • Glossary
          • Brochures
          • Patient Stories
        • Patient Registry (IPCRR)
          • Patient Registry Data
        • Understanding my Genetic Testing Results
          • K6a-pEDD-PC
          • K6b-pEDD-PC
          • K6c-pEDD-PC
          • K16-pEDD-PC
          • K17-pEDD-PC
          • Non-PC Palmoplantar EDDs
        • Managing and Caring For PC
          • Tips and Tools
          • Living With PC
          • PC & Children
          • Working With Medical Professionals
          • Family & Friends: How To Help
          • Video Library
  • For Professionals
        • For Professionals
          • International PC Consortium
          • Pharmaceutical Partners
          • Refer a Patient
          • Patient Registry (IPCRR)
            • Patient Registry Data
            • Non-PC Palmoplantar EDDs
          • Advocacy Partners
        • PC Research
          • Apply for a Grant
          • Awarded Grants
          • Published Research Articles
          • Clinical Trials
        • Patient Voices
          • Quality of Life
          • Patient Stories
          • Patient-Focused Drug Development Meeting
  • Ways To Give
        • Ways You Can Give
          • Donate
          • Donate Just Giving UK
          • Steady Relief Circle
          • Donor-Advised Fund
          • Giving Stock
          • Legacy Society
        • Raise Awareness
          • How You Can Help
          • Fundraising Ideas
          • Share Your Story
          • PC Advocates
          • Volunteer
        • 2025 Donor Gratitude Wall
  • News & Events
        • News
          • Current Newsletter
          • Newsletter Archives
          • Sign up for our Newsletter
        • Events
          • Patient Support Meetings
          • IPCC Meetings
          • Video Library
  • About Us
        • About PC Project
        • Medical and Scientific Advisory Board
        • Financial & Legal Information
        • Contact Us

Pachyonychia Congenitia Upcoming Events

2025 PC Patient Support Meeting

Learning, laughter, and love in San Diego, California, as we shared, taught and inspired one another What a fantastic time we all had a the 2025 Patient Support Meeting May 4-6, 2025 at the Hilton San Diego…

Continue Reading 2025 PC Patient Support Meeting

2023 IPCC Symposium

With excellent presentations, a room packed with researchers, and many more standing in the back, our annual meeting of scientific collaboration to advance research and drug development for those who suffer from PC exceeded our expectations! Date:…

Continue Reading 2023 IPCC Symposium

Special PPK Session at AAD Featuring PC Dermatologists

At the 2023 American Academy of Dermatology (AAD) Association Annual Meeting, PC and other painful conditions with PPK were featured in a special focus session “Palmoplantar keratoderma (PPK): step by step” on Saturday, March 18, 2023. We…

Continue Reading Special PPK Session at AAD Featuring PC Dermatologists

2023 New Orleans Patient Support Meeting

March 15-17, 2023Hilton Garden Inn New Orleans Convention Center PC patients and their loved ones, along with PC scientists and doctors gathered for the first in person Patient Support Meeting since 2019. (Our last scheduled meeting was…

Continue Reading 2023 New Orleans Patient Support Meeting

Footer

PC Project logo in white
PACHYONYCHIA CONGENITA PROJECT

P.O. Box 17850
Holladay, UT 84117

info@pachyonychia.org

801-987-8758

EIN 68-0567493

  • Facebook
  • Instagram
  • LinkedIn
  • Twitter
  • YouTube

Sign up for our Newsletter

Loading

Support PC Project

There are many ways you can help improve the lives of those who suffer from Pachyonychia Congenita.

Learn More
  • Contact Us
  • About Us
  • Donate
  • Patient Registry

Copyright © 2026 PC Project. All rights reserved. Pachyonychia Congenita Project is a 501(c)(3) under federal tax guidelines. Using this site means you accept its terms as outlined in the disclaimer and privacy policy.