PC Community

Although PC is a rare disorder, there are individuals and families around the world living with it. Their stories are touching and illustrate the complexities and effects of this condition.

PC News and Events

Click here for PC Project News and Events webpage which includes announcements of upcoming events, important news information as well as links to all PC Patient NewsBrief issues and IPCC Newsletter issues.
PC Patient Registry
Learn why this international registry of PC patients is so crucial to the worldwide efforts to find treatments and a cure for PC